A healthier you

[Sangye]

I was sure it wouldn't make me cry, but I was sobbing by the end imagining meeting the old healthy me. I miss that body so much. Today is a major Buddhist holiday and we have a long day of activities and prayer at our temple. It's after 11 am and I can still barely function. I don't know how I'm gonna do it. Even a shower seems out of reach right now. One thing it's good for-- fueling my prayers that no other being experience anything like this.

[Nancy-S]

I was sure it wouldn't make me cry, but I was sobbing by the end imagining meeting the old healthy me. I miss that body so much. Today is a major Buddhist holiday and we have a long day of activities and prayer at our temple. It's after 11 am and I can still barely function. I don't know how I'm gonna do it. Even a shower seems out of reach right now. One thing it's good for-- fueling my prayers that no other being experience anything like this.

Can you pace yourself today. Go slow and selectively participate? I hope you gain some strength that will carry you though today. I didn't watch the commercial because the thread alone makes me cry. What I would say to healthy Nancy is to stay the same. I was able to spend my days playing with kids. If I can talk to my future healthy me I'd ask for a reason to not give up.

[HopeinTN]

I think I would say...stop putting off having a child for the "right" time, it may never come. As is in my case. I waited too long, and now due to treatment (which by the way, I'm happy to have gotten) I may not be able to have one on my own. Live life and stop waiting!

[Lightwarrior]

Can you pace yourself today. Go slow and selectively participate? I hope you gain some strength that will carry you though today. I didn't watch the commercial because the thread alone makes me cry. What I would say to healthy Nancy is to stay the same. I was able to spend my days playing with kids. If I can talk to my future healthy me I'd ask for a reason to not give up.

Sangye, I agree with Nancy, but in case you can't I'm sending you all the light I can get on your energy frequency. Close your eyes and breathe.

[freakyschizogirl]

I would tell him to be a lot more aggressive about searching out second opinions to get a much earlier diagnosis of problems like Wegs and not to accept I don't know what is wrong with you as an answer. I wonder if I could have found any doctor that could have been able to diagnose my Wegs in the early stages when I only had joint pain and nasal crusting and bleeding if I tried even harder than the umpteen doctors I did search out. None of the doctors I saw, several ENT docs, and two joint specialists did along with several other doctors with different specialties had an idea of what was wrong with me or causing all my pain and symptoms.

That could've been written by me! And i completely agree. Self belief that i knew there was something wrong and challenging the docs is something i wish i had done 3 years before i was diagnosed.

I think i would tell myself to trust my instincts and get a second opinion, source a Wegs expert and never give up.

Sangye i hope you were able to make it through your day and celebrate adequately.

[KathyB]

Hope your day worked out, Sangye. Lots of thoughts and prayers are with you!

KB

[Sangye]

Thanks guys. Thursday was really rough. I just muscled through it expecting to be totaled for days. For whatever bizarre reason I was able to function yesterday (Friday). Not great, but I could leave the house. Same thing today. I'm having a lot of pain but that doesn't stop me-- the fatigue and weakness does.

[chrisTIn@]

For whatever bizarre reason I was able to function yesterday (Friday)... Same thing today....

Probably the light of Lightwarrior...
Good to know that you feel better, Sangye. Hope your energy will return more and more...

[Sangye]

LOL Impermanence.... Today I feel a zillion times worse than Thursday. It wasn't even negotiable to leave the house.

[Al]

I was sure it wouldn't make me cry, but I was sobbing by the end imagining meeting the old healthy me. I miss that body so much. Today is a major Buddhist holiday and we have a long day of activities and prayer at our temple. It's after 11 am and I can still barely function. I don't know how I'm gonna do it. Even a shower seems out of reach right now. One thing it's good for-- fueling my prayers that no other being experience anything like this.

It is utterly wretched to feel bad, Sangye. Actually, it is more than wretched, because it not only hurts, but far worse is that you can't do anything--at least anything that would make you feel good--and human. It contracts our universe, which is not how humans are built to deal with things.. I hope you made it through your day. And I hope your prayers are successful. I join you in this.

Al