The VF website has videos on there that you can watch from previous symposiums as well. I did that a couple of years ago.
Likes: 0
Phil Berggren, dx 2003
The VF website has videos on there that you can watch from previous symposiums as well. I did that a couple of years ago.
Phil Berggren, dx 2003
Registered User
Maybe those who live closer and are attending can give the rest of us a report...?Originally Posted by julia
Al
Registered User
Definatly I can share info from it.
Registered User
If anyone is interested in going, the sooner you register the better. The price goes up after early registration, plus you will have first choice of which lectures you wish to attend. Hope to see some of you there!
Registered Member
The info that JanW shared from the last major Symposium was extremely helpful-- still is. I encourage anyone who can attend to make the effort. And please please post notes for the rest of us!
One of the comments JanW shared that still rings in my head and helps many people here is Dr Seo saying that everyone deserves a chance to try going off the Wegs drugs. Many docs continue to automatically keep patients on pred and/or maintenance immunosuppresants like mtx or imuran, never giving the Weggie the chance to see how they do without them.
Phil Berggren, dx 2003
Yes, I remember this as well Sangye. And one of the first things my doc and I talked about was trying to get off all meds.
Phil Berggren, dx 2003
Registered User
My doc as well. We are going to give it a try once I'm six months post nose surgery. I think docs who are knowledgeable are coming around to this way of thinking with patients that they believe would be extremely compliant in keeping up with routine tests as well as would signal anything that might appear to be a flare. My doc now believes that after two years of tracking, that my PR3 is a good indicator of disease activity for me, and the values have continued to decrease even as I have lowered my medication.
Posting Permissions
Reply With Quote
Bookmarks