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Thread: Greetings

  1. #1
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    Default Greetings

    I was diagnosed with WG on the 15 of Nov 2011. Am currently on Cyclophosphamide, Prednisone, Omeprazole, Gliepiride, and Bactrim. I am tolerating the med's quite well and am looking forward to achieving "remission". I am from Spokane, Wa and am wonder if anyone is from this area or the state of Washington.
    Thanks for all the valuable information that this board supplies. I have learned so much about this crazy disease from the many inputs.

  2. #2
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    It sounds like you have a great attitude and that's a great start. I was diagnosed last October and am also taking Cyclophosphamide, Prednisone and Bactrim. I wish you well on the road to remission.
    "Never go to a doctor whose office plants have died." - Erma Bombeck

  3. #3
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    Thanks and the best of luck with you as well

  4. #4
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    Good for you, you are on the road w/ WG! As for Washington state, yes, there are a few from WA...even Spokane I think, Walla Walla, and Seattle area...if you don't get them, they will find you!!! Best of luck!

  5. #5
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    Thanks for the reply. I am looking forward to finding anyone from the Spokane area. Best of luck with our WG battle. Ken

  6. #6
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    Greetings from Olympia, and welcome to the forum! Yes, there are several in Washington on the forum, and some are quite active. I was diagnosed in April 2011 and have been reading the forum ever since. I'm on most of the same drugs you are, and while not yet in remission, my symptoms have improved dramatically, and I wish the same for you.

    Anne

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    Anne,
    Thanks for the reply. Although new to this board I continue to be impressed with the knowledge I have learned from reading the comments. Hopefully, after one year you are close to remission. Best of luck in the future. Ken

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    Ken--You haven't had your DX too long, so you are probably still on a pretty high dose of steroids. I hope you are tolerating it well!

    As I told you in an email, there are several of us in the general area. Is your doc in Spokane? I doubt there are any real specialists there, so you are lucky to have found someone who knows how to diagnose WG. Stay with us, and please report your progress! This is a good community.

    Al

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    Al,
    I started with 60mg of Prednisone and am currently down to 20. I gained all the weight I had previously lost before I was diagnosed and then some!! (Got the “moon-face and big gut). A few other problems but seem to tolerate it pretty good.
    The Dr. I have has not treated many WG’ers. He said he worked with 2 while in Rochester,NY and only me here. However, he is not afraid to call a specialist for assistance. He is a kidney Dr. by trade. I have no idea if there is other WG’er in the Spokane area and Dr has no idea as well.
    Ken

  10. #10
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    Quote Originally Posted by KenL View Post
    Al,
    I started with 60mg of Prednisone and am currently down to 20. I gained all the weight I had previously lost before I was diagnosed and then some!! (Got the “moon-face and big gut). A few other problems but seem to tolerate it pretty good.
    The Dr. I have has not treated many WG’ers. He said he worked with 2 while in Rochester,NY and only me here. However, he is not afraid to call a specialist for assistance. He is a kidney Dr. by trade. I have no idea if there is other WG’er in the Spokane area and Dr has no idea as well.
    Ken
    The pred can be a nasty affair, Ken. I'm one of the few who actually lost weight, but I found plenty of side effects on my own....

    My main wrangler is also a nephrologist. I find kidney docs, in general, a little more savvy than many, though I still have plenty of things to argue with him about. Or maybe that's just me....

    Al

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