When I read stories like Karen's and Nancy's I realise how lucky I have been in being diagnosed so quickly. Ok so it took about two years for my GP to send me to hospital, the hospital did not like my SATs (78%) so decided to keep me in and start doing some tests, on the sixth day I first heard of this weird disease and treatment started.
Although my consultant is "only" a rheumatoligist he has fifteen of us with WG and patients with the other forms of Vasculitis. Whilst he is not a Vasculitis expert he does have a great interest in such diseases and attends relevent conferences and keeps abreast of the latest reports. Also Peter (PWC51) and I give him anything we have come across with a "Oh have you seen this?"
Karen all I can say is quack, quack and tell your doctor to pull his/her finger out. About a year ago, in this country (the UK), a 14 year old girl was diagnosed with WG. Two days later she was dead, purely because they had taken so long in working out what was wrong with her!
Jim
You give but little when you give of your possessions. It is when you give of yourself that you truly give. Kahil Gibran
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