I'm still at that fun stage of early diagnosis... In short review, I've had symptoms for about 19 months including near daily fever, roving joint pain, eye pain/blurred vision, MAJOR sinus issues. Had a positive c-ANCA in August of last year, have been trying to get things figured out ever since.
I saw my ENT to schedule a sinus biopsy just before Christmas. He wants to do that plus a major overhaul of my sinuses and septum. My infectious diseases doctor is not sure that's a good plan and the rheumatologist doesn't really love the idea either.
I followed up with the rheumatologist today who noticed my eye is all red again. When I again explained the regular, severe eye pain I have and that I'm working on about another 8 week sinus infection/bronchitis that has not gone away, he called an ophthalmologist right away.
If that guy agrees that I have scleritis, I am supposed to start MTX/Bactrim/Prednisone/Folic Acid immediately.
I am already on prednisone, but will bump back up to a higher dose. Have been on Bactrim until yesterday when I switched back to Levaquin for the infection.
Now that I'm close to starting this, just curious how the side effects tend to be, in general, on MTX. I'm mainly concerned about nausea/vomiting with the oral meds since I have a pretty sensitive stomach and get majorly dehydrated and hospitalized any time I get a stomach bug.
Sorry for the long message!!
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