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Thread: Rheumy suggests Methotrexate

  1. #11
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    Well the joints pains were awful...I will know Wednesday doing some lab work on Monday...Although I am still on Cyto 150mg, I was also on pred 20mg...and as soon as he dropped me to 15..."WILDFIRE"

    Anyway...we did not make the swich to cellcept as he wanted to and now he bumped me up to 40mg of pred to deal with the pain in the joints.

    Ever since I became romantically involved with my BFF or Wegs...can't seem to break it off---That Life of Weggies!!!!

  2. #12
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    Quote Originally Posted by RCOSSIO View Post
    I was also on pred 20mg...and as soon as he dropped me to 15..."WILDFIRE"
    Did you jump 5 mg all at once? It might have been too big a jump. I didn't know it back then--didn't know all you folks with pred experience-- but in retrograde, I can see that my rheumy tapered the pred way too fast. I had the awful joint pains, too.

    Quote Originally Posted by RCOSSIO View Post
    Ever since I became romantically involved with my BFF or Wegs...can't seem to break it off---That Life of Weggies!!!!
    That is hilarious.

  3. #13
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    Ah the fickle Wegs, it just spreads its romance around. It definitely looks like you tapered too quickly. Last time I went down to 5.5 when the joint pain hit, but like you (thru your doc), tried to wean myself too quickly. Just go real slow first by 5 then 2 for at least 3 weeks. good luck
    Jolanta

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    Default Dropping prednisolone

    I've had 2 eye incidents when my rheumy told me to drop by 5mgs. NOW I make my own decision and if he says drop it by 5 then in a month drop it another 5 I write out a schedule to drop it by only 1mg a week but keep to his ultimate schedule. So I have 5mg tabs as well as 1mg tabs. I'm now down to 10mgs. I think I have developed a fear of going off it completely - it will be interesting to see if I can. I'm not an addictive sort of personality but I guess the fear of it all happening again is very much still with me 12 months after the onset. Regards Carol Australia

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    I agree with dropping the preds too fast. I started at 60 mg per day, after two weeks went down to 50 mg per day and then to 40 mg per day. When I went down to 40 mg, my symptons sky rocketed plus I developed more problems. I went back up to 50 mg per day and then went down to 45 mg per day. On May 13th I will be going down to 40 mg again, so we will see what happens.

  6. #16
    Doug Guest

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    Richard (and others who've had the same treatment)- Have you asked your doctor why he makes the big drops in Prednisone instead of adjusting your Cytoxan (or whichever drug you are on)? I know they don't want to take you off it too fast, nor leave you on it too long, but each time they have to deal with a setback, they assure you will be on nasty drugs longer than ideal. I may be off on the Cytoxan (I'm just going by how the pulmonologist and rheumatologist handled my case), but the closer I got to the end, the smaller the drops in Prednisone as a percentage of total dose. I've been trying to find my signout papers from Denver, the one that gave the Prednisone regime I was on. I will attach it or copy it once I find it, because I think you all will be surprised how I was handled. No adjustments were made from the schedule (made at the end of January 2004, completed by the end of April 2005). It just seems to me that several of you are suffering needlessly. That's just me.

  7. #17
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    Default Interesting how much our body makes naturally - Prednisolone

    I saw my rheumy today. I asked him how many mgs our body makes naturally. He said that's an interesting question and thought about 2mgs. I asked what he thinks my long term plan will be and said to get off Prednisolone. At some stage go down to 2 Imuran a day and keep the 3 Bactrim a week - for a long time he thinks. What are other peoples long term plan for medication?
    I saw the nose specialist this week too and I asked him about all the polyps I had removed about 5 years ago. He said they were very unusual at the time and had extra tests on them - so he thinks maybe it was Wegs then although I didn't get sick until 1 year ago.
    As we are travelling to Dubai and Turkey soon I asked what do I do if I have problems. He said to go up to 20mgs (from 10mgs) for 3 days. Is this what other people do?. Apart from my eye incidents from dropping Pred too fast I have never needed to increase my Pred. Regards Aussie Carol

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    My prednisone was at 80mg when I left the hospital. I believe after my kidneys started working is when they started reducing it. First by 5's, then once I got to 10mg, it was reduced in 1mg increments every 2 weeks.

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    Does anyone know how fast the Prednisolone withdrawal reaction is? On the odd occasion that I have forgotten to take my morning pills, I have felt terrible before the end of the day. I'm not sure if this is the lack of Pred or due to one of the other drugs. I've been on 10 mg for around 10 years, more before that.

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    Hi Carol, you mentioned that you had 2 eye incidents. What were they? I am having alot of trouble with my eyes. Part of the problem is that I have developed a mass beside my right eye, but I also have a problem with double vision, they are very sensitive to light and become very sore and irritated quite fast. When I wake up in the morning it takes about 1 hour for my eyes to adjust and somewhat focus.

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