Likes:
0
-
Rheumy suggests Methotrexate
Hi everyone - I haven't posted in a while and just had my rheumy appointment yesterday. To quickly recap my situation, I have had two surgeries to remove lung nodules in the past ten years following episodes of coughing up blood, with no actual diagnosis until January 2009, but no medication regimen. After the appointment in January, my doc said that we would see what my blood tests did over the next three months and go from there. Results yesterday showed that my ANCA level is up from 127 to 275. All my other blood work was fine. The only symptoms I am currently experiencing are fatigue, headaches and occasional swelling in my joints. Both my doc and the specialist he is working with suggest I start Methotrexate to keep my ANCA level from going up anymore and to keep more severe symptoms at bay. So any input on this suggestion? What could I expect from the Methotrexate? Thanks!
-
Hi Erika,
I'm on Cellcept, but no pred. My ANCA has risen non-stop in the nearly 3 yrs since I began treatment (first cytoxan and pred, then mtx and pred). It's now thru the roof.
For me, the ANCA doesn't correlate, because it's gone higher as I've improved. My bloodwork is staying pretty stable, though I also have pretty bad fatigue, joint pain, and other stuff. For others, it's a good predictor.
Recently my JHU rheumy said he wouldn't treat a high ANCA unless the other labwork was off, too. He felt many of our symptoms go up and down without amounting to much (ie, no flare), and he isn't a fan of increasing the drugs unless absolutely necessary. He's one of the VF docs (Phil Seo), and he's done a lot of research specifically on the use of ANCA.
It might be good to ask your doc to consult with a VF specialist. From what you wrote, it just doesn't sound like your Wegs is on the rise.
-
My number "chemically induced" has been relatively stable...but as soon as my Rheumy dropped my pred from 20 to 15...all joints pains have "Come Alive"
I know that he wanted to drop the pred but boy what an experience. Haven't played golf in over a month.
Anyway with WG being my new BFF it seems that I probaly could have made the switch to cellcept and then keep my pred at 20 and reduce it by 1mg...not 5mg (25% drop) now this is the second time I tried dropping it from 20 to 15 and every time without fail...joint pains....and mind you there not NICE!!!!
The last I visited the Rheumy he did not want to drop pre by 1mg and insisted on 5mg...well guess what the third time around no more...cause it seems i take 3 steps back when he drops it so much.
-
Richard,
My rhuemy is dropping me by 2 and 1/2 instead of 5. Maybe you could try that route?
Erika,
I am currently on MXT with no problems, so hopefully you experience some relief and no side affect from it either.
Best of Luck! We are all so different, it seems.
I have a question for anyone out there. I have a rash under my left arm only. Rash, acne, whatever and I am certain it is a reaction of sorts to one of my meds? Have any of you experienced this and what med is it causing it?
PS-I am left handed. ( only left handed people are in their right mind, ya know?)
Lisa coffeelover
-
Lisa, why do you think it's a drug reaction?
-
I guess I am guessing. I think it is a drug reaction because what else could be my possibilities????
Lisa CL
-
Lisa
Can't help you with the rash but I'm a leftie too (new link with WG - we're all left handed?!)
Luce
-
Thanks Coffee..th next time I am dropping the pred much more slowly...I just took another setback..they put me back on 40mg of pred because my sed rate shot up!
-
Oh, man, Richard-- so sorry to hear that. I hope they didn't increase the pred on a high sed rate alone (lots of things can cause that).
-
Sheesh Richard, any other changes in you blood work up? You complained of joint pain before, so I think maybe you just lowered pred too fast. Like me a while back and I ended back on cyto after 2 months. This time I am taking it easy. From 40 to 25 in 5 weeks. My rheumy wanted me to go down by 10 every 3 weeks but I modified it to 5 every 1 1/2 weeks. At 20 ( in 1 week yepee) it will be 5 every 3 weeks and at 10 only 2 every 4 weeks. Hopefuly my body will be adjusting just fine because I will be on azathioprine in July.
Jolanta
Posting Permissions
- You may not post new threads
- You may not post replies
- You may not post attachments
- You may not edit your posts
-
Forum Rules
Bookmarks