yeah i am back.....update

[LisaMarie]

I first want to say how much I missed you all...and glad to be able to check in....at KU....just had my trachea opened...it was 50% occluded...now I can breathe...praise God....start my next run of Rituxan January 10 then again 14 days later....I have to start seeing an .ENT along with my otolargnologist since mine specialize in my trachea more than any thing else...so I will try to see one here at KI in his office....Dr Garnett is one of the best in his field with subglotic stenosis and WG...so he will keep my trachea...but both ears and jaws are acting up so Dr Specks and Dr Garnett wants me to have a specialist to keep an eye on it...so add another doctor. Life is still troublesome at home....please pray it resovles soon...will be losing my house but think I found nice one to rent which is smaller than mine but will house my 10 yrs old son and 3 dogs, so I am grateful...I am learning to take it moment by moment and Trust in God to lead the way.....I am grateful for each day and material possession are just that....so

[LisaMarie]

So through pray and mediation I have found peace and a better understanding...WG may be part of me but I will not let it control everything...also Thanks Jolanta for updating everyone...love and missed you all you are truly my lifeline

[Al]

I first want to say how much I missed you all...and glad to be able to check in....at KU....just had my trachea opened...it was 50% occluded...now I can breathe...praise God....start my next run of Rituxan January 10 then again 14 days later....I have to start seeing an .ENT along with my otolargnologist since mine specialize in my trachea more than any thing else...so I will try to see one here at KI in his office....Dr Garnett is one of the best in his field with subglotic stenosis and WG...so he will keep my trachea...but both ears and jaws are acting up so Dr Specks and Dr Garnett wants me to have a specialist to keep an eye on it...so add another doctor. Life is still troublesome at home....please pray it resovles soon...will be losing my house but think I found nice one to rent which is smaller than mine but will house my 10 yrs old son and 3 dogs, so I am grateful...I am learning to take it moment by moment and Trust in God to lead the way.....I am grateful for each day and material possession are just that....so

Thanks for the update, LisaMarie. I am very sorry to hear of your other troubles; I truly wish we had the capability of helping with that. Still, the ability to breathe is an important first step! Please let us know how it goes with the new docs in your life.

Al

[drz]

Breathing is very very important. Wegs taught me two things for sure. The most important thing is to be able to breathe and get enough air. Number two is the stuff in the garage and house is just stuff and doesn't really mean much when you can't breathe and you doubt you will see morning light. Now I also know that life after resurrection can also be good even though it is greatly different and limited in many ways from before GPA. It is now much easier to appreciate and enjoy the important things in life.

Glad you can breathe better and may be finding a little more peace of mind with lower stress levels too. Best wishes for better 2012.

[Sangye]

I'm glad your trachea dilation went well, Lisa Marie! Hope you start to feel better soon. I know what you mean about losing all your material stuff. It just doesn't matter. Hugs to you, tough cookie.