Hi there,
I haven't been here for ages, so hello again. I've been diagnosed since 1977 when I was 9, and have had some really good times and some quite tough times.
Last couple of years have been particularly tough. I had a renal transplant in 2000 but got a very resistant ESBL infection in one of my native kidneys. Last two years I've spent a lot of time in hospital and had three nephrectomies including my lovely transplant so now dialysing again. Also had PCP last year which was very unpleasant. Chest symptoms for most of this year after transplant immunosupporession was withdrawn and I just had a bit of pred, which I've now been on for - eek! - 34 years.
Just yesterday got formal diagnosis from doc and started back on 40mg pred and MMF. Here goes!
So I came back here to say hi because I'm a feeling a bit rubbish about stuff. So hello!
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