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Thread: Gidday everyone from down town Brisbane Australia

  1. #1
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    Default Gidday everyone from down town Brisbane Australia

    My name is Steve, Recently dx as a wedgie on 19-12-2011, Only thing I new about a wedgie before that was what we used to give and get as kids when we were at school, I have been reading this site for a few days now and have learnt so much from you all and feel 100% more confident in dealing with it now, cant thank you all enough for all your stories, helps so much mentally when your talking with people that know what your going through.

    I have been up all night have insomnia tonight, have not been getting it every night but only been on the meds for 7 days. The kidneys are what copped it with me, dropped down to 12% function, up to 20% yesterday and creatanine is starting to drop heaps already so all heading in the right direction so far, few swellings here and there in the hands, shoulders, feet and knees but the pred soon put them at rest.

    I am on 100mg meth and 60mg pred and all the rest of the lollies they give you to protect or keep at bay all the other gremlins that want to attack you, they always say the cure is sometimes worse than the disease, in our case hopefully they will find a cure.

    I have a pretty weird or funny sense of humor how ever you take it, and I come out with some different sayings every now and then that maybe some of you wont get or understand, Just know that I will be trying to keep a positive attitude and a sense of humor to what is a shitty situation for all of us.

    I will leave you all for the time being with by best wishes and sincere thanks for the support and look forward to everyone kicking wedgies arse in 2012, also here is a little food for thought.

    Life is a **** sandwhich you just have to get use to eating the crust

    Take Care Talk Soon

    Steve

  2. #2
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    Welcome, Steve--welcome to life on the crust. Just what we need--another weggie with a sense of humor. Hah! Actually, you will find that we are a pretty comical bunch, if occasionally manifested in a sort of a Keystone Kops fashion. For some reason, facing down a potentially fatal disease makes us appreciate the funny stuff. Who knows? Maybe it makes us more tolerant. Despite our diversity, we all get along well. (Don't we...? Most of the time...?)

    The one thing that strikes me immediately is the inclusion of MTX, even though your kidneys are in bad shape. MTX is not considered a kidney friendly med. More often in such cases , Imuran or CellCept is preferred.

    I know about the pred insomnia. Best, I think, to resist the urge to clean out your garage, or split a cord of wood. Maybe keep a notebook by the bed for those brilliant, if, by morning, illegible nocturnal thoughts.

    Al

  3. #3
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    Quote Originally Posted by reb876 View Post
    Life is a **** sandwhich you just have to get use to eating the crust
    That's OK, I like sandwiches...LOL...welcome Steve...this site is wonderful although it can be a bit blithe and lighthearted in here (we're all so sad we have this disease that we just can't keep a good laugh down!)...and that attitude along with all the knowledge and experience gathered in one place...it's quite OK in here!! You'll like it! Best of luck!

  4. #4
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    Gidday Steve and welcome.
    As you can see from the previous replies to your post you are in the right place. Tough to be dealt a bad hand with wegs but there you go. On here you will find support and information that will be of huge benefit to you in dealing with your new Christmas present.

    Lots of us Irish down under at the moment due to the recession here. Keep an eye out for them mate. They are a good bunch. By the way, they like an odd beer.
    Brendan
    Brendan

  5. #5
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    Quote Originally Posted by Widthofacircle View Post
    Gidday Steve and welcome.
    As you can see from the previous replies to your post you are in the right place. Tough to be dealt a bad hand with wegs but there you go. On here you will find support and information that will be of huge benefit to you in dealing with your new Christmas present.

    Lots of us Irish down under at the moment due to the recession here. Keep an eye out for them mate. They are a good bunch. By the way, they like an odd beer.
    Brendan
    Brendan
    So good they named me twice

  6. #6
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    A double welcome to you Steve..... first from another Aussie and second from another Weggie.

    Yes, you have found the correct website to be a member of ...... there is no other like it.
    I do mean that in the most brilliant (for knowledgeable people) lovable (for the way everyone looks out for each other) and humourous (the most funniest or weirdest people you can find) sort of way.

    Pred is such a wonderful thing (she says tongue in fat cheek) to help get the pains under control quickly.

    I hope everything starts improving shortly.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  7. #7
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    Welcome Steve to our wonderfully exclusive club. I am not sure that we do an extensive line in sandwiches but I am sure Andrew will do his best to accomodate you!

    Jim
    You give but little when you give of your possessions. It is when you give of yourself that you truly give. Kahil Gibran

  8. #8
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    Welcome to the group, Steve.

  9. #9
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    Welcome Steve
    The reading here does help control the fear factor of this beautiful disease.
    The support is also great

  10. #10
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    Sorry Al my bad, I am not used to all the abbreviations yet its 100mg cyclophosphamide not mtx

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