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Thread: Prednisone

  1. #121
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    Shannon, being in the pool has helped me with balance so much. I was falling all the time before. One of the simplest things you can do (in the shallow end, of course), is just walk forwards, backwards and sideways. You can also stand on one foot to stimulate the nerve endings for balance. Very easy in the pool and it does carry over to land quite well.

  2. #122
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    Quote Originally Posted by Shannon T View Post
    General inquiry: Has anyone had hearing loss that continues to change although on pred and chemo? My hearing aides don't seem to help as I thought they would and I wonder if that might be due to continuing hearing change? Has anyone had hearing significantly restored? That would be nice.
    Wow... that would WONDERFUL if it did come back! My hearing was the first thing to be affected and with the hearing loss came severe constant ringing in the ears. Unfortunately the ringing is actually worse than the loss sometimes, since it masks whatever I might be able to hear otherwise. It also means hearing aids wouldn't do a thing for me (most likely).
    I have had one ear regain a small amount of hearing since I've been on the meds... nothing drastic though.
    Elizabeth J.
    Officially a Weggie since April 2007

  3. #123
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    I think I've heard some people say some of their hearing returned. I guess it would depend on the extent of damage and the reason for the hearing impairment. I don't have ear involvement, but I notice when the Wegs is a little fired up (even just for one day) my ears feel plugged, like they need to pop and can't. I assume that's just a mild inflammatory response. Maybe that's the type that improves.

  4. #124
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    How do you manage with the hearing loss? Have you learned to read lips? How long have your ears been impaired? My ENT just put me on a great big dose of pred to see if I could get some improvement in the right ear which has become more damaged within the last month or so. 80 - 3 days, 60 3 day, 40 for 3, 20 for 3. I had been down to 10 a day before this.
    Shannon

  5. #125
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    Thanks for the suggestions regarding balance and the pool. I will stay in the shallow end. I am the person who had the near drowining incident in the deep end. But I will do whatever it takes to get balance. I hate the cane.
    Shannon

  6. #126
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    Shannon - I've never been able to read lips!! I guess I've just gotten used to not hearing *everything* in a conversation... being able to pick out the important points more or less and figure things out from context. Of course my closer friends/family know the trouble I have and I do tend to ask them to repeat themselves more often than I would someone who doesn't really know what's going on with the WG.
    Elizabeth J.
    Officially a Weggie since April 2007

  7. #127
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    i've had hearing problems for the last few years.if i'm watching tv i only understand about 50% of what is said,so i've invested in a good set of headphones which has solved that problem.if somebody speaks to me with their back turned i ask them to turn around and repeat it.my wife reckons i'm lip reading although i've never learned it.maybe my eyes are compensating for my ears.
    john.

  8. #128
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    Quote Originally Posted by crackers View Post
    i've had hearing problems for the last few years.if i'm watching tv i only understand about 50% of what is said,so i've invested in a good set of headphones which has solved that problem.if somebody speaks to me with their back turned i ask them to turn around and repeat it.my wife reckons i'm lip reading although i've never learned it.maybe my eyes are compensating for my ears.
    john.
    Don't you have Closed Captioning in the UK? It's great for hearing impaired people, and all US televisions made after a certain date (several years ago) come with the capability. The technology is out there. If not, it's something to lobby for in the UK or EU, whichever parliament is concerned with human rights or handicap issues.

  9. #129
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    I have simply adjusted to the fact that my hearing is not that good. The ringing is worse of course when all is quiet, but with ambien noise I hardly hear it. On note, when I burp (yes burp) it clears for that split second, so i assume it is good news and only inner ear swelling is what creats the hearing loss. As far as hearing aids, I tested one and it does help both the hearing loss and the ringing. Apparently the aids compensate for the ringing by "distributing" it between the ears thus creating a "vacuum" which in turn truns"off" the ringing. So Shannon try hearing aids, I decided not to get one since I seem to be doing OK without them and only have a real hard time where there is a lot of ambient noise like a noisy restaurant or a ball game.
    Jolanta

  10. #130
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    Hello, everyone,

    I was wondering how people's hearing loss first presented? I've been getting pain in my right ear several times a week since September (when this current flare first started). The pain affects both the inside and outside of my right ear. Sometimes my hearing on that side is muffled and noises like me crunching on some food, seem especially loud. The ear also 'pops' a lot, like I'm on an aeroplane, but never actually clears.

    I've had hearing tests and eardrum-pressure tests, which were all fine. The only finding by an ear-nose-throat specialist was that my right ear drum is clouded. All my major nasal symptoms (bleeds and crusting etc.) are on the right-hand-side, too.

    Does this sound familiar to anyone?!

    Thanks!

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