Prednisone

[elephant]

Ivelisse, at age 15 I developed kidney failure. At that time my creatine was a 2.0 and stayed there for a while and then creeped up slowly and finally got a kidney transplant... my brother gave me.
Ivelisse, I guessing the Wegeners affected your heart. I get my heart check out yearly. I have always had chest pain and heart palpitations. So I am on blood pressure medicine to decrease the heart rate as well.
I am on cellcept and from what I know myfortic is the same but a coated version.
Ivelisse, are you on a waiting list for kidney transplant?

[MCC]

I totally understand.
I'm only 17 &since I've had Wegners (15y.o)my steriods have been high then they bring them down and then right back up if I get sick again.
It's extremely hard,I have self esteem issues &have fallen into serious depression because of my weight.I've gained over 50 pounds in a year and half.I was really skinny before I got diagnosed &now my face is puffy &really round and i'm overweight for my age. I'm always hungry,it's crazyy.&My mood swings are terrible,I'm fine one minute &the next no one can speak to me. It's really annoying,right now I'm on 10mg of Medrol and I can't wait to go back to the Rheum Doctor's to see if they can bring them down.

I am sorry about your depression hun, it must be very hard being at school too and dealing with Wegener's so young. What dosage of prednisone are you on now?

I am grateful for the understanding of everyone on this forum x

[MCC]

Since my dosage of prednisone has gone done to 20mg I have started to get a runny nose in the last few days. At first I thought I was getting a cold, but now I'm wondering if it is a return of my symptoms, as I had a constant runny nose through the Wegener's affecting my sinuses.

I am seeing my doctor tomorrow for a check up so I will speak to him, but in the meantime do you think a return of symptoms is a sign that the pred dose is too low to work? Did anyone else find this?

[Jack]

After having severe sinus and nose involvement in the early days, all the symptoms disappeared when I was taking cyclophosphamide and pred. When I was in remission and taking milder drugs (Myfortic and pred.) I had a slightly runny nose and had to blow it several times a day, but this was nothing at all by comparison to the full blown Wegs condition.

[elephant]

Mandy it could be a cold or sinus infection. Just keep an eye on it. It is so annoying isn't it! Be persistant! I tell myself this all the time!

[Sangye]

I'm always suspicious of a return of any indicative symptoms when lowering pred.

[MCC]

Thanks for your replies. I'm thinking it could be a return of symptoms because it's been like this for 3-4 days without developing into a full blown cold which I would have expected to have happened by now. I guess I'll see what my Doctor says tomorrow.

Lets hope it's just a mild cold!

[MCC]

My boyfriend has got a cold now, so am assuming that is what mine is. My doctor doesn't seemed concerned anyway, he says 5 weeks into my treatment I am doing well - white cell count has gone down slightly and my kidney function is good...so it is looking likely I will only need 6 treatments of cyclo.
And I have lost a kg! But they were different scales.

[elephant]

Good for you Mandy. Hang in there. Probably is a cold. Hope you feel better soon.

[DuaneHart]

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