What to call ourselves

[Chris G]

I don't like change in general. I don't like the new name...nor will I use it. I have wegener's. Huh? Wagners? No. Wegeners. That's hard enough. I don't have the patience to say granulomas with polyarteritis over and over.

[Dryhill]

I guess im in the majority of one, but the fact that the name can be linked to the Nazis actually makes it a better name for the disease. Whatever name/word you can think of to describe them, relates very well to one aspect or another of WG, Nasty, evil, sneaky, morally reprehensible and so on.

I think this sums up Wegeners perfectly. I am pleased that so many people intend to stick with the original name. When I started this thread I thought this might be a fun way of finding what peoples feelings are about the name change.

Bob, I like your suggestion, that should really confuse people.

Jim

[Tippon]

I've heard that the name change is so that it makes it easier for doctors to diagnose e.g. Wegeners doesn't really mean anything to them, but Granulomatosis with Polyangitis is more descriptive. Don't know how true that is, but it sounds plausible

[Hammy8241]

I've heard that the name change is so that it makes it easier for doctors to diagnose e.g. Wegeners doesn't really mean anything to them, but Granulomatosis with Polyangitis is more descriptive. Don't know how true that is, but it sounds plausible

I think if that was the case then they would have to re write the medical dictonary. Mind you that would help with the unemployment numbers.

[Tippon]

Not really, it would just be changed over the next few updates. e.g. Under Wegeners - see GPA, under GPA you would have (formerly known as Wegeners).

[Hammy8241]

Not really, it would just be changed over the next few updates. e.g. Under Wegeners - see GPA, under GPA you would have (formerly known as Wegeners).

No mate, what I meant was there are one hell of a lot of names which don't easliy relate to what the symptoms are: ie. measles - new name - itchy, scratchy and dotty!

A new thread?

[Tippon]

Ah, sorry, I get what you mean now. I'm a bit slow lately (I'm blaming the meds )

[Dryhill]

It is possible that some of the reason for the name change is to help with diagnosis, because a few of the other vasulitis names have changed.

[julia]

I have read that they are updateing/changing many diseases named after people. Like our disease they want the name to represent the "condition". I do not mind the change.

names
Granpollys, grupies, pollygrans,

[Sangye]

I think the new name is just stupid.