Last day of pred

[Geoff]

Congratulations and good luck for the future Red!!

[jola57]

It's great not having to take pred, I am looking forward to the day. Gurinder, your story could be mine, just add one year more and some lung and joint pain oh and no rtx, just plain old cyclo and mtx. I am still on mtx and just 3mg pred and hope to join you and Red in the no pred zone.

[BrianR]

[QUOTE=gurinbasra;51379] - it's great to be worried about the normal things in life.

Gurinder - there is a lot of meaning packed into this phrase of yours. 18 months ago, all the typical, worrisome "normal things in life" disappeared in a nano second when I got that phone call from Marta from her hospital bed. The initial diagnosis offered no hope. Then a revised diagnosis the following morning brought me back to the land of the living (Marta was dealing with the situation far better than I was I am ashamed to say). I think now I am much better at dealing with life's little issues and indeed, it is great to be "worried about the normal things in life".

[Al]

Reading other WG stories is so helpful, Gurinder. Thanks for sharing. The unique aspects for each individual must make it a challenge for doctors, not to mention the patients. Seems as though most stories I've read here have a significant upper respiratory involvement. Although mine is minimal, I'm learning so much and paying close attention! It looks like my kidney function is remaining steady (1.7 creatinine) which is such good news! "Hope" is truly my new favorite word! Enjoy your day!

Kathy, your choice of favorite words is a good one! Even better, of course, is hope built on realistic expectations. It is great that your kidney functions are stable! Like you, I have minimal upper airway involvement, which is something to be thankful for. Yes, we are all different. A challenge to the doctors? I suppose, but, hey, it's there business to be so challenged. For us, well, we have to take it more personally!

Al

[Al]

You should be hopeful to stay healthy, you should be excited, it's great to hear that you are excited about the holidays - it's great to be worried about the normal things in life.

Terrific words, Gurinder! "Worry" and "normal" take on a new glow in light of having been through what you've been through. Please let us know how how it all goes with you.

Al

[Al]

[QUOTE=BrianR;51508]

- it's great to be worried about the normal things in life.

Gurinder - there is a lot of meaning packed into this phrase of yours. 18 months ago, all the typical, worrisome "normal things in life" disappeared in a nano second when I got that phone call from Marta from her hospital bed. The initial diagnosis offered no hope. Then a revised diagnosis the following morning brought me back to the land of the living (Marta was dealing with the situation far better than I was I am ashamed to say). I think now I am much better at dealing with life's little issues and indeed, it is great to be "worried about the normal things in life".

Funny how that works, Brian. It really is amazing how the sense of normality is hardly the absolute we, in previous lives, would have imagined it to be. It is cliché, of course, to say that these changes make us appreciate what is truly important. Cliché, but true. It is a different world now, yes. Yet, it remains that you have a terrific family that will change the universe.

Al