Hi everyone! I am not doing as well as act too. the monster is back and decided to come back in a different place, It has always been my hands and mildly all joints with pulm function decline. This time it has surprised me in my right foot. I dont remember bracking any toes but it started with one swollen toe than the ball of my foot now the whole foot. Got it to dr. Soloway first thing monday. suffered through the weekend. also know if it were just broken the er would just wrap it to the toes next to them. so i tried that and it was no help. started feeling that lovely flu like aching as the foot got worse. it has been 11 weeks since my rituxan infusion and it isnt lasting the 4 months it is meant too . Doc wants to do 4 infusions a week apart. rx company is good to go . the insurance company is what we are waiting for. We where all hoping to start this week because of the conituing wg. He upped the medrol to 36mgs til next week.
he explained that if I were to go back on cytoxin I would have to wait 6 months til the rituxin is out of my system. he said if he did put me on it now it would kill me. Calcium levels in blood are high as well as the other report. Get two new docs to check thyriod and blood disese docs next tuesday.
The pain clinic is really getting me mad. I have been calling everyday for a week to get in to up the pain meds with the increase in pain but no response. soloway said he will back me up so they will. have to get them first.
I have also decided to apply for every assistance i can get for the government. i am not able to work as much as i need too.
going for second round of back injection tonight. He told me he would give me hip injection at the sametime. yeah!!!!!!hope it works for the pain in the dead bone femur area and bring back the feeling in the leg and foot leftside.
Talked with Helen last night. she has had a bed couple of weeks. She went in for the lower Gi and had palups removed. Then after surgery went home and started hemrging baddly. back to the hospital and 6 blood transfusions and 2 surgerys she is home but still getting out of the hospial lag. The weakness etc. Asked her if she would like to go to lunch when she is up to it. we were on the phone for an hour and a half. She thanked me repeatedly and i her.
Also found out about a newbie in soloways care. The infusion manager gave her my number like i asked her too but no call yet. she seems to be having bad headaches after infusion. so i asked the manager is she drinking enough water while infusion is being done. she hasnt. so the manager said she will delute the rituxin with more saline next visit.
cant believe the docs and nurses are asking me for advise??? I often am asked if i am a nurse but have no college ed. just real life experience for about 15 years with my mom and now myself.
Helen said to thank all of you whom i refer too a lot. she wishes she could do this but they dont have a computer or any idea how to use one.
the new weggie is young but dont know how young.
see from another view.......on a tree top.
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Originally Posted by annekat
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