The VCRC Vasculitis Illness Perception (VIP) Study

**Sangye** · 11-22-2011, 12:55 PM

Hopefully everyone will register with the Vasculitis Clinical Research Consortium (VCRC). I got an email from them today with a study being conducted via internet survey. It's all about how people with vasculitis perceive their illnesses. It only takes a few minutes to complete.

Here's the info page on it, with info on how to participate.

**drz** · 11-22-2011, 03:12 PM

Originally Posted by Sangye

Hopefully everyone will register with the Vasculitis Clinical Research Consortium (VCRC). I got an email from them today with a study being conducted via internet survey. It's all about how people with vasculitis perceive their illnesses. It only takes a few minutes to complete.

Here's the info page on it, with info on how to participate.

I got the invite and it took me to this page too but I don't see a link for taking the survey. They said they fixed it so us old guys can do it too as they didn't intentionally exclude us, just a programming error.

**Sangye** · 11-22-2011, 03:16 PM

The link is in the email they sent you. There's one that takes you to the information page, and another that takes you to the survey. I didn't see it at first, either.

**jola57** · 11-23-2011, 04:50 PM

I got my email yesterday and will definitely register.

**renidrag** · 11-23-2011, 11:47 PM

The link was hard to find, I went to another message and when I went back it appeared in the blue as a link. It still took me a couple of times to get into it. Yes, I am old also, I wonder if it was part of the test?
Dale

**Sangye** · 11-24-2011, 04:19 AM

LOL Dale.

**Dirty Don** · 11-24-2011, 04:43 AM

Got in finally...registered, got my email link, reregistered, not sure what I'm gonna get out of it, but it's on my resource list now. Thanks Sangye!

**drz** · 11-24-2011, 01:05 PM

I found the right link and got in to where I could update or edit my info, but when I wanted to take the survey it said it had no record of me, so I guess my edited profile was a figment of my imagination or a dream I had while sleep surfing on the internet.