The VCRC Vasculitis Illness Perception (VIP) Study

[drz]

I got the email invites and tried several times but kept getting messages that I don't exist in their data base, re-registered again, emailed the contact person and got no response so gave up trying to do the survey. I am in the longitudinal study and DNA study for GPA which require personal visits to one of the GPA specialty centers.

[delorisdoe]

I got the email invites and tried several times but kept getting messages that I don't exist in their data base, re-registered again, emailed the contact person and got no response so gave up trying to do the survey. I am in the longitudinal study and DNA study for GPA which require personal visits to one of the GPA specialty centers.

drz...there is a new webinar this monday. fyi

[pberggren1]

drz...there is a new webinar this monday. fyi

Oh goody, a new word: webinar: spiders on the internet.

[Aunnie]

Hi All,

FYI

I am a patient at Boston Univ. Med. Center and am a Patient of Dr P Monach and Dr P Grayson,the docs that are conducting the survey ,so I mentioned I could not get the link for the survey.
Dr Grayson said to email the person listed in the text. He also said they have been having a lot of trouble with the host setting up the survey. They have been trying to get it on line for us since October. So I guess be patient and we will be able to participate.

Aunnie

[drz]

They sent a link that work to get started doing the survey but then the web site lost connection, I got connected again and started again, and it lost connection again. My internet is working fine for all other sites so it was their web site that had the problem.