new to this

[drz]

We're here for you Nessa! I think we've all felt some level of depression, and can relate to both that, and the frustrations of having this disease. It's a great group. Lay it on us!!

I think if one isn't a little depressed after learning your diagnosis you must be in denial about the severity of what it can do. That doesn't mean it will always be a down hill road though as things can and usually do get better with treatment and time. There are for most of us ups and downs and it is struggle at times which is why we come here to share and to shore each other up as best we can.

[Dirty Don]

well stated drz, this is an up and down and somewhat emotional disease...we're better off learning asap that we need to be good riders and survivors, not just trying to 'beat' this...doesn't work from what I've read in here and other places...

[nessa]

well im glad to know im not alone ,i get embarrassed talking about it sometimes. i think to myself why me.. but i guess i just have to learn have to deal with it.. i dont even kno how to being my story lol..

[nessa]

I think if one isn't a little depressed after learning your diagnosis you must be in denial about the severity of what it can do. That doesn't mean it will always be a down hill road though as things can and usually do get better with treatment and time. There are for most of us ups and downs and it is struggle at times which is why we come here to share and to shore each other up as best we can.

thanx im glad to know that im not alone i never talked to someone else that has wg before so it makes me feel a little better =)

[Kami]

i would really love to talk to someone im very depressed about having wg life just hasnt been the same.. thanx nessa:

Hi Nessa, I just wanted to check back in and see how you're doing?? I sure wish I was in Florida today, it was 16 degrees below zero at my house when I woke up this morning and it's suppose to be colder tonight. Bbbrrrrrrrrrr! I hope you're doing ok! Best wishes, Kami

[pberggren1]

Hi Nessa, I just wanted to check back in and see how you're doing?? I sure wish I was in Florida today, it was 16 degrees below zero at my house when I woke up this morning and it's suppose to be colder tonight. Bbbrrrrrrrrrr! I hope you're doing ok! Best wishes, Kami

It was minus 35 C here yesterday morning. And with the wind chill it was minus 49 C.

[KathyB]

Hi Nessa, I'm also pretty new to WG (diagnosed at beginning of September) and have only been on this site for a couple of months. BTW, one of the best decisions I've made! This group is amazing -- from the level of information and expertise to the compassion and true empathy displayed. The first thing I learned is that we all have very different WG involvement (organs, joints, body parts!) yet the information shared is valuable to us all because this disease can be crazy and unpredictable. The more we learn and share, the better patients and advocates for ourselves we become. This is critical to managing the disease and our lives! I hope you are doing well in all areas of your health. Sorry it took me so long to chime in! Welcome!

KB

[nessa]

Hi Nessa, I just wanted to check back in and see how you're doing?? I sure wish I was in Florida today, it was 16 degrees below zero at my house when I woke up this morning and it's suppose to be colder tonight. Bbbrrrrrrrrrr! I hope you're doing ok! Best wishes, Kami

hi kami thanx for writing me.. wow the weather there sounds crazy how do you deal with living in such a cold place lol, i get sick off the wind it seems like i could imagine if i was there.. well hope all is well thanx again for writing...

[drz]

Hi Nessa, I just wanted to check back in and see how you're doing?? I sure wish I was in Florida today, it was 16 degrees below zero at my house when I woke up this morning and it's suppose to be colder tonight. Bbbrrrrrrrrrr! I hope you're doing ok! Best wishes, Kami

Good news though, the mosquitoes are gone!

[Al]

Nessa! Nice to hear from you. I, too, was wondering how you are doing and so on. One thing: I think I'd rather be in Florida than where Phil lives....

Al