Health Segment on TV on Wegener's tonight

[marta]

Thanks you guys - you're all so amazing. I spoke so much about so many things - I talked a lot about all you all, but two minutes is what they had to work with so lots of stuff got taken out. Phil, Sam's docs at Addenbrooks (sp?) told her that it's 22 in 1,000,000 which translates to 1 in 42,000, so I low-balled it.

Thanks Sangye, I did give her the chemo for Wegs vs chemo for Cancer, but they didn't use it.

Despite my absense from here, I think about you lots! Life's just gotten way too busy on me.

Big hugs to you all.

[rif]

Just watched the video marta, you came across very well, would have loved to see the whole interview as the more people who know about WG the better. Great response to the survey too.

rif

[Lightwarrior]

Marta,
I just watched it from your link. You were amazing and it was so awesome to see you in person, your strong and solid spirit shine all around you. Thank you for doing such a great job.

[Psyborg]

Great clip Marta. Thanks for getting the word out

[Thakator]

Well done, Marta, well done.

[Chris G]

It was great Marta! I'm not sure I'd have been brave enough. Kudos to you!!

[HypnoticEyez]

Good job, Marta!!

[maria garcia]

Thank you for spreading the word Marta. By the way you look great!

[vdub]

Outstanding! You look great! Didn't notice any babbling.... :-)

[Dryhill]

It is very encouraging to learn that the media will take notice of ous weggies. Thanks Marta you did us proud.