numbness in foot, anyone?

[ScreaminMeanie]

I've noticed that my feet also get very cold, both in feeling and to the touch, when the pain/numbness is most noticeable. I just wish I could tell if it was getting better or worse!

[pberggren1]

Watch out Leigh. Batman is watching..........lol

[kulharv]

Elephant, Al and Delorisdoe,

Elephant: Circulation is fine and toes are pink. Just numb and painful.

Al and Delorisdoe: It feels good to whine specially if there are friends out there understand where it coming from.

I appreciate my new family and can't tell you how much its meant to be a part of it!

Bless all of you!

[Al]

Elephant, Al and Delorisdoe,

Elephant: Circulation is fine and toes are pink. Just numb and painful.

Al and Delorisdoe: It feels good to whine specially if there are friends out there understand where it coming from.

I appreciate my new family and can't tell you how much its meant to be a part of it!

Bless all of you!

...Ad we are glad and enriched to have you in our family, Harvi! Too bad it is necessary, though. But we would still love you even if you didn't have WG!

Okay, so your toes and such are fine. That is encouraging, even though the pain remains. This means that though the nerves may have incurred some damage (at either the local level or further up into the central nervous system, the tissue itself is doing okay and should function perfectly well on an indefinite basis. This knowledge does not ease the pain, of course, so go ahead and "whine" as much as you need--we'll listen! When you do find a compatible Wegs specialist, be sure he or she knows all the details.

Al

[kulharv]

Al,

Thanks. Today was one of those days that I wanted to feel sorry for myself and whine as well as cry the whole day.
It is comforting talking with everyone in the forum.
I can't quite put an expression to it as to how it makes me feel.
But I am also enriched to have made new friends thru the forum.

Once again thanks!
Have a good nite. I believe that you are in the same time zone as myself being in the Pacific NorthWEst

[Al]

Al,

Thanks. Today was one of those days that I wanted to feel sorry for myself and whine as well as cry the whole day.
It is comforting talking with everyone in the forum.
I can't quite put an expression to it as to how it makes me feel.
But I am also enriched to have made new friends thru the forum.

Once again thanks!
Have a good nite. I believe that you are in the same time zone as myself being in the Pacific NorthWEst

Yes, Harvi. I am on the other side of the border. Some days are "cry" days. It is hard to explain even to your closest loved ones how all-consuming this thing can be. Yet that's not quite right. I still feel like my best and most productive days are ahead of me, even while living, breathing, and dreaming this stuff. It is lovely to know that there are others with similar, if not identical thoughts about this.

Tomorrow I'm off to visit the opthamologist. These prednisone-induced cataracts are a real bother! Paraphrasing the tuck-in when my kids were small: Nighty-nightly, sleep tightly, don't let the...ANCA bitely...!

Al

[ShaniBooT]

Dean was in the hospital over night. He got up Friday morning and was too sick to get out of bed. His head and eyes hurt him and he had a very bad stomachache and he felt nauseated.
I told him he needed to get up and eat something so he could take his medicine. I was thinking that could be the problem as I let him sleep until late morning. He finely got up and took 4 bits and threw up. It looked really dark, like maybe blood in it. He just laid on the floor and finely went and laid on the bed again. I asked him if I should call our doctor he said no that it would go away. Well, I called the doctor and they said to go to emergency right away. I put some of the throw up in a bottle and took it with me. I gave them the bottle of throw up and the nurse said they wouldn't need it to throw it away. I put it in my pocket and when the doctor came in I gave it to her. She said right away to check it out. They found blood in it and the doctor said that was very smart of me. I hope the nurse learned something from that. I didn't say any thing to embarrass her. Dean had a CT and they put him in the hospital for Friday night, and put him on a lot of medicine and infusion. He came home late afternoon yesterday (Sat.). They feel it is the prednisone that is causing the bleeding. They were going to put a camera down his throat, but decided he should see his doctor. His doctor is out of town on vacation and so he has a stand in doctor, so that is who we will be seeing tomorrow morning early. I'm off to bed.
Barbara & Dean

[Al]

Dean was in the hospital over night. He got up Friday morning and was too sick to get out of bed. His head and eyes hurt him and he had a very bad stomachache and he felt nauseated.
I told him he needed to get up and eat something so he could take his medicine. I was thinking that could be the problem as I let him sleep until late morning. He finely got up and took 4 bits and threw up. It looked really dark, like maybe blood in it. He just laid on the floor and finely went and laid on the bed again. I asked him if I should call our doctor he said no that it would go away. Well, I called the doctor and they said to go to emergency right away. I put some of the throw up in a bottle and took it with me. I gave them the bottle of throw up and the nurse said they wouldn't need it to throw it away. I put it in my pocket and when the doctor came in I gave it to her. She said right away to check it out. They found blood in it and the doctor said that was very smart of me. I hope the nurse learned something from that. I didn't say any thing to embarrass her. Dean had a CT and they put him in the hospital for Friday night, and put him on a lot of medicine and infusion. He came home late afternoon yesterday (Sat.). They feel it is the prednisone that is causing the bleeding. They were going to put a camera down his throat, but decided he should see his doctor. His doctor is out of town on vacation and so he has a stand in doctor, so that is who we will be seeing tomorrow morning early. I'm off to bed.
Barbara & Dean

I am so hear about this turn of events, Barbara. You did well to make sure Dean got to the emergency room, and you did well to "preserve the evidence". I know it is hard to think straight at those times, but you did everything right. Somehow it always seems that the doctor is away at the crucial times. Please let us know how this works out.

Al

[watersedge]

Hi Harvi. Have just been reading your story. You seem so nice and genuine, I am sorry for all the pain and discomfort you are feeling and hope you can get some relief soon. Best wishes.

Barbara, I hope your husband Dean is doing o.k. and is feeling better.

[elephant]

Sorry to hear about Dean, and glad you got him to the hospital ASAP! Keep us updated.