Originally Posted by
annekat
I think we all go through that. As long as you are getting correct treatment, it's OK not to worry about the "life threatening" thing. You WILL feel more encouraged and less afraid as you start to feel better. I'm lucky enough not to have kidney involvement, so don't know how scary that would feel, but when my lungs were in really bad shape and the drugs were making me feel lousy, it did enter my head that I felt like I was going to die. It didn't take long for me to realize that the drugs were making me better and I was tolerating them much better. Now, a little over a year since dx, I'm feeling MUCH better and though I still have some symptoms, hearing that WG is "life threatening" doesn't affect me much, although I know I'll have to be careful for the rest of my life.
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