Newly Diagnosed and starting Cytoxan/Preds/Bactrum today

[Chadwyck]

HopeinTN, I would love to tell you what to expect. However, I was told by many of my doctors that if I ever run into other Wegener's patients, DO NOT compare myself to another because it affects us all differently. So I will only suggest, do what the doctor tells you. Last week, my family doctor was stunned when he found out I need a hip replacement because of prednisone usage. He told me that it usually takes a couple years of being on it consistently for that to happen. Also, out of his 45-50 years of medical practice I'm the second person he has with Wegener's. He told me that most family doctors in all their years of experience never ever run into a Wegener's patient. The emergency room in my area normally goes through approximately 5000 patients per month. Look at the outcome:

Wegener's affects 1 in 30,000 to 1 in 50,000 people.
Emergency Room 5000
Summary, in one month we're the only Wegener's patients to walk into the emergency room in a 5-10 month period.