Several have experienced this. Was told by a doc that slow blood "leaks" (how I put it) are not uncommon w/ Weg's. During my last hospital stay my blood count was 6.? which they bumped to 9.? I did feel better but wonder why they didn't give me enough to put me in normal ranges: 13-17. Maybe only so much blood at once is good. Sounds like transfusions when needed are the answer to this problem but no one said this .
Has your doc provided you with more info re blood "retention" and the treatment?
David
Bookmarks