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Thread: Regular Blood Loss w/ Weg's:

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  1. #1
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    Default Regular Blood Loss w/ Weg's:

    Several have experienced this. Was told by a doc that slow blood "leaks" (how I put it) are not uncommon w/ Weg's. During my last hospital stay my blood count was 6.? which they bumped to 9.? I did feel better but wonder why they didn't give me enough to put me in normal ranges: 13-17. Maybe only so much blood at once is good. Sounds like transfusions when needed are the answer to this problem but no one said this .

    Has your doc provided you with more info re blood "retention" and the treatment?

    David

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    I am probably wrong because it was so long ago for me but I think the idea is that you dont need to be bumped up to 13-17 because as long as you are bumped up to a certain level your body should be able to get you to where it needs to be from that point. I was somewhere around 4 I think. Long time ago though so I am not sure. also my problem was brought on from cytoxan and not wegeners itself.
    lightning crashes
    leigh

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    Default That sounds familiar too...

    because I was on Cy and maybe that's what I'm thinking. May be going back after my Rit treatments. I'll keep an eye on it.

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    My doctor looked at me from accross the waiting room and said "oh my, I think we have a problem.' I guess you look pretty bad when you are that sick. I know I said 4 but that is only because I think lowere is impossible lol. 2 actually sticks in my mind 4 just sounds more believable.
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    leigh

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    At 6.? my doc said much lower and I wouldn't be here.

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    Ya, that is why i think i am wrong about 2 but I know at the first follow up appt I was at 4.
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    leigh

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