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Thread: Weg, deviated septum and surgery recom'd by local MD

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    Default Weg, deviated septum and surgery recom'd by local MD

    Hello to all,

    Just like last year, my daughter finds herself in a sinus predicament. She was treated with Rituxan last Spring, her B-cells have repopulated, and she is currently suffering from another sinus infection. Her local 'old school' ENT has cleared her sinuses mechanically several times over the last few weeks, and he states that unless he surgically corrects a deviated septum she will continue to have recurrent sinus infections. She has had both fungal and bacterial infection of the maxillary sinus. Treatment for the fungal infection at Mayo, Rochester was debridement, and they did not recommend septal repair.

    Our concern is operating on a Weggie septum, and the risk of saddle nose or inciting more inflammation to an already inflammed area. I seem to remember that those that have seen Dr Robert Lebovics suggested he does not do surgery on Weggie sinuses except in extreme circumstances.

    Where can I find current information on this subject?

    Thanks for any suggestions in advance.

    Jane, mom of Alison

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    I guess I would if possible go get reassessed at Mayo and with Lebovics since procedures and knowledge some times change as do our physical conditions and see if there is a consensus today. Personally I would not have surgery unless doctors agreed it was necessary and likely to help. The exception might be if I absolutely couldn't stand present situation and was willing to take a risk that it could get worse.

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    From what I have hear from the top ENTs that know Wegs, including Dr. L, I would not get and sinus or nose surgery unless is was absolutely neccessary. I have saddle nose and a deviated septum. All 9 ENTs I have seen said they would not do surgery on me to correct it because it could cause a Wegs flare and if I can breath okay through the nose then there is no problem.
    Phil Berggren, dx 2003

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    I was operated on for a deviated septum and had my first Wegs "attack" about a month later with diagnosis of Wegs 4 months later on. I can only surmise that the operation instigated the Wegs which may have been lying "dormant", I just dont know.
    The one good thing is that I have a wonderful sense of smell and taste and I guess you could drive a bus up my nose. I am just getting over a cold and I do believe that because my airways are so open, there is a reduced chance of infection building up, but hey I'm no doctor.
    I would agree with Phil and Drz however that it would be like poking a hornets nest to start drilling out your septum.

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    My wegeners doctor flips out now everytime he sees me over the fact that I had surgery in june-I did not there is just some communication problems-he insists he must be consulted before any non emergency surgery. Too bad he keeps forgetting that I did not have surgery in the first place.
    lightning crashes
    leigh

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    Quote Originally Posted by delorisdoe View Post
    My wegeners doctor flips out now everytime he sees me over the fact that I had surgery in june-I did not there is just some communication problems-he insists he must be consulted before any non emergency surgery. Too bad he keeps forgetting that I did not have surgery in the first place.
    Why does your Wegs doc think you had surgery?
    Phil Berggren, dx 2003

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    My ENT has recommended that I have a "button" inserted to close my perforation.

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    Quote Originally Posted by pberggren1 View Post
    Why does your Wegs doc think you had surgery?
    Communication problems.
    lightning crashes
    leigh

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    Quote Originally Posted by delorisdoe View Post
    Communication problems.
    Send him an email with your avatar and then he might remember.

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    Quote Originally Posted by drz View Post
    Send him an email with your avatar and then he might remember.
    I'm not sure he knows how to use a compter
    lightning crashes
    leigh

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