Pred is basically THE treatment. Pred is a bitter-sweet pill to swallow (sorry - warped humour). The side-effects can be a pain but the fact that it can mean the difference between life and death is a big pay-off. I'm pretty sure though that the stunted growth will only occur after long-term use/high dosasges. Plus, Katie is 'lucky' in that she's contracted this disease before her teen growth spurt so, in my totally complete-lack-of-medical-training opinion, if she's n a low/no dose in a few years or so then effects might be minimal/non-existent. Dr Sangye?? Thoughts?
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Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
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