That sounds like active Wegs to me. Where are you at in your treatment?
I took up my old medication (daily high dose of bactrim. No pred.)
Talked it over with my GP.
Haven't spoken to Wegs-specialist yet...
I was in non-medicated remission since may of this year.
On and off I 've had some 'mini-flares', but this time it felt no good at all , so I started taking bactrim again.
The tiny blisters are slowly (very slowly) disappearing. Shoulder pain also seems to diminish a bit. A few weeks ago I started a new program of 'medical fitness'. That is fysiotherapy and cardiotraing under supervision. My fysiotherapist told me, after she heard of my shoulder pain, that we would skip the powerlifting today, but that it was okay to do the cardio- and leg-exercizes.
I'm glad the bactrim is helping. Be very careful about the exercise program until you know more. If you've got a flare brewing, exertion can put you over the edge.
Thanks Sangye. I'll keep that in mind.
The exercise-program is put together carefully though... They gave me a heart rate monitor to wear during the training, and I'm not allowed to go above a certain heartbeatlevel (127, I believe..).
Btw... this remark made me laugh out loud. I LOVE that!
Last edited by chrisTIn@; 11-27-2011 at 02:02 AM.
The blisters are WG related. Had them seriously just before summer's flare, along with joint pain, lung interference, sinus...blah blah blah. The blisters occurred between my fingers and, of all places, along my jaw lines. Like being a teen all over again!! Anyway, they were 'stingy' painful. They did clear up since the surgery and influx of drugs (on mtx & pred), but one in particular between my fingers, although healed completely, healed with tightness in the skin that produces that 'stingy' pain anyway even though there's nothing but a small scar left where the blister was.
You seem pretty sure, Don, and I think you're right about the blisters.
I followed Sangyes advice, and decided to cancel the exercise-program for a while.
I visisted my GP, he sent me to the polyclinic for an X-ray, and the radiologist there saw a tendinitis calcarea, or an inflammation of the tendon, due to calcification.
I wonder if there's a relation with WG.
It still hurts a lot, in about two weeks I can see an orthopaedic specialist.
Next monday I'll talk to the WG-specialist. Hope he can give me some advice about the treatment...
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