Of course!
I agree with John that they might really need help from you because they're on overload. I was diagnosed as my doctor drove me to the hospital. All I knew about Wegs was what they told me. They weren't Wegs specialists, so it was pretty inaccurate info.
I didn't have computer access for months, and none of my friends did internet research the way I would. I didn't know of this group for 2.5 years! I was completely shut off from information that would have helped me tremendously. I was so overwhelmed with phone calls and visitors, I couldn't ask for help. And, I could barely function being so sick and weak.
It may be difficult for them to ask for your help. It's best to just offer it.
So please share what you've learned with them in your computer travels. You can repackage it to be easy to read. Ask if they need/want it-- would it be helpful. If they're not ready, hold onto it--they will be soon, I guarantee you.
Meanwhile, keep collecting info. It's necessary to know everything you can about Wegs. Judging from many of our experiences, you might save Katie's life.
Bookmarks