Mayo Visit

[Brooke]

Thanks Sangye
How have you been feeling? Do you think this round of Rituxan is working any better?
Random question:
Do you know what would be the best drug for a maintenance? By "best" I mean with the least side effects.
Just curious of future meds I may need...
I do know that some probably work better for others.

[Sangye]

It's really hard to tell how I'm doing rtx-wise because of the switch to hydrocortisone. We increased the dose the past couple days which definitely helped. But after just one day out yesterday I am really wiped out today-- more than normal. So is it the rtx not working or is it the HC dose? No way to tell right now.

I think the only choices for maintenance drugs are mtx, imuran and Cellcept. Mtx and imuran seem to be tolerated well as long as you aren't allergic. Cellcept causes diarrhea (mild to severe) in a large number of people but is otherwise tolerated well. It's very individual!