Research into Why?

**freakyschizogirl** · 08-20-2011, 09:21 PM

There seems to be a staring game in the Vasculitis clinic in Addenbrookes. Whenever i go everyone looks around at each other trying to guess who has what. Think i'll buy one of the wegs hoodies and see what interest i gain from that, and maybe some new friends too, lol.

**Sangye** · 08-21-2011, 02:05 AM

ROTFL That's true at JHU Vasculitis Clinic, too! Dr Seo is very punctual though and I never get to actually wait and meet others. All my other doctors run late. The only waiting room I don't mind waiting in is the only one I don't get to wait in!

**pberggren1** · 08-21-2011, 10:18 AM

My doc is very punctual as well. The longest I ever had to wait was about an hour but he had an ER emergency he had to tend to because there was an auto accident. But my doc only has 2 other Wegs patients anyway. I never asked him about other vasculitides though.

**elephant** · 08-22-2011, 10:24 AM

I never met a WG in the flesh, but mabey someday.

**Kami** · 08-27-2011, 07:14 AM

I live in a small town of 3150 and about 10,000 in the area and there is one other Weggie in town. I met her when I got sick, she heard about me and called my friend and then we got in touch. I haven't talked to her in a long time, I should try and see how she is doing. My Rhuemy is at the University of MN and he has been there 15 years and he says he gets about one new Weggie patient every year. There are other doctors at the University that also treat Weggies though so I don't know how many total a year get diagnosed there. That would be interesting, and why wouldn't they all have the same doctor so that doc would be like the weggie specialist of the University??? Hhhmmmm??????????

**michael99** · 09-05-2011, 03:37 AM

have any of you heard about any tests/research they are doing where they believe bacteria may be the cause?? it seems some Doctors may think a certain class of bacteria maybe to blame along with our predisposition (genetically).