Mike: 27 years without WG

[mikecaven]

My WG disease came back a little less than one year ago. I had zero symptoms since late 1982. No knowledge as to why it returned. It took me a bit of time this time to believe that is what it was...as I thought I had pneumonia. After 10 months of treatment (Cytoxan and Prednisone) I appear to be back in remission again. Has anyone been in remission as long as me (27 years). Just wondering if I am unique?

I just joined this forum.

I'm Mike from Plano, Texas

[Twice]

That must really suck!

That's the longest I've come accross, although I remember reading somewhere about someone being in remission for 40 years. I might have imagined it, though. I've never managed more than about 10 years.

[Jack]

I think it was 100% terminal 40 years ago.

[andrew]

Welcoem to the forum, Mike. Wow, that's a long, long time to be in remission. Congrats for getting back into remission so quickly as well. I have yet to achieve that hallowed status and maybe I won't. Dunno. Anyway, I honestly have never heard of someone being in remission that long. Where did the Wegs affect you (both times)?

[Twice]

This lady seems to have done well. Jack, I think the early survivors were in the mid-late 60s.

[Sangye]

That lady might have done well, but the link to her story didn't. Ahem.

[coffeelover]

welcome! 27 years without re occurance is awesome. I hope I can be so lucky! It is encouraging to hear though. I am happy for you that your remission came back again quickly. I hope you go another 27 years
coffeelover

[andrew]

That lady might have done well, but the link to her story didn't. Ahem.

Fixed the link

[Twice]

Oops! Thanks Andrew.

[Carol]

Wow! I hope I can be in remission for 27 years -that takes me to 82yrs although I reckon it would kill me if I'm that old and I am as sick as I was this time round. It's interesting to know at what point you are considered "in remission" . Did you stop taking all medications during this time??????