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  1. #1
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    Default Freaky's back from Addenbrooke's and...

    I am coming off Methotrexate, which i've been on for nearly a year now as the top bloke Dr Jayne says i'm still smouldering and need a better drug. His choice is Rituximab over Cyclo for obvious reasons and hopes to give me 2 (i think) infusions as soon as the funding comes through and hopefully off the steroids within 6 months.

    He told me surgery wasn't even an option for me at the moment for my saddle nose and to put me off for at least 9 months if not 18. But did tell me a stern NO to fillers as they are just plastic and from a wegs point of view its a really bad idea. Bit deflated by that but i know they are only doing whats best.

    Back again in 2 months and hopefully start the Rituximab as soon as funding is done. Whoop Whoop!

    Oh and vdub, if you're reading this i took a few photos of Duxford as we drove past this morning, i'll put them on my profile page laters. x
    I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps. Jack

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    Good News Sam, glad things are been sorted out for you .I had the plastic fillers put in twice before dxt no bother having in but did nothing for my nose . As soon as they came out everthing started again !! DEEx

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    Thanks Dee, shame the fillers didnt work for you.
    I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps. Jack

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    Oh and vdub, if you're reading this
    Of course, I'm reading this! And, thanks for thinking of me. Duxford is definitely on my bucket list and now, with you there, I have an additional reason to see it.
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
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    Quote Originally Posted by vdub View Post
    Of course, I'm reading this! And, thanks for thinking of me. Duxford is definitely on my bucket list and now, with you there, I have an additional reason to see it.
    Oh you flatterer!!
    I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps. Jack

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    Yeah Sam

    When I was an 'athlete' (in my own mind) in my past life (a year and some ago) I'd take a long run or a long bike ride or a long cross country ski in a similar fashion to what you've been dealt with at the docs. Small incremental goals. You have a couple of great ones before the nose issue and once you get them it will definitely be time for celebration. So you have great news. Three big reasons to celebrate before you get to celebrate the nose job. For any person that is great, but for a WegHead it's even better. I'm happy for you! Very happy for you!

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