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Thread: Breathlessness

  1. #11
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    I made the difficult decision to take legal action against the NHS, I was so devastated. I found out a few weeks ago that I won my case, really pleased, and hope that this will make mis diagnosis of this type less likely in the future x
    Wegeners Granulomatosis diagnosed May 1995. Tracheal Stenosis since 2000.

    Proud mum of 3 beautiful girls, post cyclophosphamide (so it really can happen!) xxx

  2. #12
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    WOOOOOO!!!! Congratulations on the win, you deserved it. Like you, I hope it prevents others from going through the same thing.
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  3. #13
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    Default Breathlessness reply

    My friend has WG and every 12 months she goes into hospital to have her lungs done - from waht she tells me they stretch her airways to open up the scar tissue that developed. I'm not real sure of the procedure but that is how she explains it. Hope this helps.

  4. #14
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    Ooh. Sounds like having a face lift from the inside out.

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