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Thread: Just an update on my situation.

  1. #91
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    Mar 2009
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    Quote Originally Posted by jmmilliorn View Post
    Thanks, Phil. We'll know soon. Just praying it is an endoscopic procedure, not through the neck. I really dread waking up with a feeding tube out my nose for week or more.
    I so know what you mean about the feeding tube. But you are strong and have much support from here and your family and God will give you the strength to get through it all.
    Phil Berggren, dx 2003

  2. #92
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    Best wishes for success in your surgery. Always hope for the best outcome but know you can handle whatever happens. Let us know how it goes!

  3. #93
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    what happened with Jack? I had not known abt this and I am so sad. I will be offline now for a few days as am moving so hope to talk to you all next wk.

  4. #94
    Join Date
    May 2011
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    Santo, Texas (60 miles west of Fort Worth)
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    Well, I'm doing pretty good lately. Not too many symptoms. My shortness of breath has improved and I feel pretty good most days, though I tire easily. I'm down to 12MG pred for the second time this year and no flare ups since August. My Cleveland Clinic doc, Villa Forte, says I may get another Rituximab infusion in Dec. and then finish tapering off the steroids. May be drug free next year if all goes well. Only concern right now is my upcoming throat surgery on Thurs. Nov. 3rd for the swallowing problem--unrelated to WG. Hope it is endoscopic not through the neck. Won't know till I wake up. Repairing a Zenker that chokes me when I swallow. This is my second in a dozen years. Wish me well.

    Mike
    J. Mike Milliorn, Santo Texas
    Diagnosed Jan. 2011
    at the Cleveland Clinic

  5. #95
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    Dec 2010
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    Good luck for Thursday Mike,
    I'm sure after all you have been through this past year, the surgery will be a breeze (fingers crossed).

    Next year is so close now - as a friend told me today, only 56 days till Christmas - you will be drug free in no time.

    Take care
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  6. #96
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    Feb 2011
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    Hi Mike! I don't think I've seen you on the board in a while! I'm glad to hear you're doing well, and the sob has let up some.

    Good luck with the surgery! Keep us posted.
    ~ Chris ~
    (Female )

  7. #97
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    Glad to hear you're doing so well, Mike. I'm hoping that next year finds you drug-free.

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