Just an update on my situation.

[Rose Cozzette]

ditto what Sangye said on gradual improvement. I can only walk abt 1/2 mile and thats pretty slow. my aches really increase with the distance esp hips and feet. on cellcept my head got fuzzy and more memory probs which has improved as it is decreased. and you will lose wt as the preds is decreased, min e has happened slowly and is still coming down. think the diabetes affects wt also. what a tangled web! found a place to move to and have good offer on this house so ready to go!!

[jmmilliorn]

I'm having my throat operated on Thursday the 29th to repair or remove the Zenker. Won't know till I wake up if it was endoscopic or not. Doc says 50-50. Through the side of the neck is a much tougher operation and recovery. I'm so tired of choking and swallowing problems though I almost look forward to it. This is my second operation for swallowing problems. Not WG related. Probably caused by GERD.

Down to 15mg steroids again. Doing 2.5 less each week till I get to 10. Then I have to call Dr. Villa Forte for more instructions. Tolerating the Cellcept OK so far. Taking 1 gram daily.
Still walking in the mornings when I'm not too weak and shaky. Getting a little less short of breath but not losing any weight.

[Psyborg]

Best of luck Mike.

[RudiK]

Good luck, Mike, I hope it works out and corrects your problems with swallowing. All the best. Rudi K.

[Sangye]

Best of luck, Mike. Thanks for letting us know how you're doing!

[elephant]

Ditto! Hope you feel better soon.

[Rose Cozzette]

good luck Mike! hope it helps.

[jmmilliorn]

Thanks, Rose. I'm feeling positive and optimistic about the expected outcome. My surgeon is supposed to be the best at this.

[pberggren1]

I sure hope this works for you Mike.

[jmmilliorn]

Thanks, Phil. We'll know soon. Just praying it is an endoscopic procedure, not through the neck. I really dread waking up with a feeding tube out my nose for week or more.