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Thread: Travel Insurance for us?

  1. #11
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    Isn't there a way to just have the wegs excluded from your policy? I do not need insurance for that and would be quite happy to go without - my concern is something else happening.

  2. #12
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    I used this one this year as it allowed me to apply online. Medical Travel Insurance at World First

    I was asked the questions below. (left my answers in - I know many of you will have different answers) I was accepted and cost £75 worldwide


    Wegener's granulomatosis
    --------------------------------------------------
    Q. Are you awaiting treatment, specialist referral, investigations or results of tests?
    A. No
    Q. How frequently do you undergo medical review for this condition?
    A. Once every 6 months
    Q. When were you last admitted overnight to hospital for this or a related medical condition?
    A. I have not been admitted overnight for this medical condition
    Q. Do you smoke?
    A. No, I have never smoked/gave up at least 6 months ago
    Q. Either as a consequence of WG or separately, have you been diagnosed with any of the following? (select all that apply):
    A. Sinusitis
    Q. Can you walk up 2 flights of stairs without shortness of breath or needing to rest?
    A. Yes
    Q. How many courses of antibiotics have you required in the last year for this medical condition?
    A. 0
    --------------------------------------------------
    Sinusitis
    --------------------------------------------------
    Q. Are you awaiting treatment (including surgery), specialist referral, investigations or results of tests for this condition?
    A. No
    Q. How many courses of antibiotics have you required in the last year for this medical condition?
    A. 0
    Behind every great man is a woman rolling her eyes.
    Jim Carrey



  3. #13
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    I don't know if this is any use for anyone not in the UK, but I have just purchased travel insurance with these guys: Travel Insurance UK - Cheap Annual Holiday Insurance It is reccommended on Money Saving Expert so a legitimate company.

    The questions they ask about Wegeners are 'do you have lung/kidney involvement? Have you got breathing problems? Have you had dialysis? etc'

    If you do have lung or kidney involvement it means your premium jumps considerably. It cost me 34 pounds for a week to the US with Wegeners excluded. With it included it would have been 126 pounds. If you do not have lung and kidney involvement it would cost around 50 pounds to have it included.

    This seems a lot, but it is to the US which costs more anyway, and at least it's good to know we can get cover if needed.

  4. #14
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    For anyone in the UK - give ' Staysure ' a try - I haven't had any problems getting covered for travelling abroad (incl USA) with Wegener's and HBP.

    Fran

  5. #15
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    Just make sure you read all the fine print, as you definitely do not want to get caught in the US without complete coverage. One visit to the ER for something very simple can cost you thousands.

  6. #16
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    I am About to Try and book a flight and get Travel insurance for myself . I have been googling Insurance and coming up with will not cover Auto Immune Diseases . I have asked friends who travel alot who they go threw and checked there sites out but No ..
    Im going to book threw a travel agency as its the 1st time as an adult Flying .. I'm going down today to talk about Insurance and see if they can find some for me . Getting the policy in writing is a great Idea and will be doing that for sure IF they can find a cover for me .
    I seen My ENT Yesterday ANd asked about my ears And how they will go on the plane . See said my left will be fine but my right wont I will get pain in it and could end up with a perforation because my eustation tube don't function . GREAT !! Insurance is a must for Me I will probably need it before I get off The plane lol . I hope I can get some !
    Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
    currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .

  7. #17
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    Hi Natalie,
    I would be interested to know how you get on.

    I travelled to the US just before diagnosis, so not a problem with travel ins there
    I travelled to Fiji just after diagnosis and elected for a policy not covering pre existing conditions....and thankfully no disasters. I don't have tubes in my
    ears and they were actually very well behaved on the flights.

    Am currently thinking of going back to US next year and only yesterday rang around to a few travel ins places (QBE, travel insurance australia ...the main two)
    Very expensive and no pre existing conditions, therefore would love to know how you get on with full cover.

    As always
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  8. #18
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    Wow, I think I've been very fortunate all those years of working for an oil & gas company. I am covered through them even for personal travel for up to $2 million per person, per incident and my husband's work covers personal travel too I think at $1 million/person/incident. All I know is that I have called Manulife (insurance co.) and they have my Wegener's noted and before I go on an overseas trip, I make sure I have the OK with my dr's (because Manulife said if I have any claims, they will check with dr's), and then I let them know I've been OK'd - that's mainly so that they'll cover for any costs if I get sick due to the WG. Hopefully, it all worked out with your husband's coverage.

    I'm still glad to have my job - more so now than ever. It is Manulife that's covering for my Rituxan 100% with no maximum's.

  9. #19
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    well I went and had a talk to the travel agency , she gave me a Medical Assessment form to give to my doctor to fill out , then Its up to the insurer to accept it .. they Go threw Cover.More Travel Insurance . Just reading it fine print that the Insurance is issued by Greater Lakes Insurance UK ...Trading as Greater lakes Insurance Australia ( why dont they just call it Greater lakes Australia ).. I have attached the part in the policy that deals with Medical Conditions for yous to have a squiz ..

    I would say most insurance mobs would have similar out lays .
    Attached Images Attached Images
    Last edited by Natalie; 08-04-2011 at 07:25 AM.
    Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
    currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .

  10. #20
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    these may be easier to read ..

    Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
    currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .

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