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Thread: Please explain what Wegeners really does.

  1. #31
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    Quote Originally Posted by chrisTIn@ View Post
    I guess that is the case.
    No nerves, no pain, lol.

    Thanks for your answers so far.
    Tomorrow I'm seeing my GP, next month a have an appointment at the vasculitis centre again.
    I'll take the 'arthritis'-information with me...
    I guess I was thinking that it could be nerve inflammation and damage we were feeling, as we sometimes do in our feet and hands. But maybe more prominent around the joints, where there's more wear and tear. But then the joints get red and swollen too, more so for others than for me. And the joint pain goes away with treatment, while the neuropathy in the feet seems harder to get rid of. I guess there is some nerve regeneration eventually, but it takes time. And there must be more to the joint pain than just nerve damage. My guesses are all over the map.
    Anne, dx'ed April 2011

  2. #32
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    Quote Originally Posted by annekat View Post
    ...there must be more to the joint pain than just nerve damage. My guesses are all over the map.
    I stumbled onto this article...
    Thought it would be nice to share, because it confirms what we were talking about (rarely deforming)


    Musculoskeletal symptoms

    Musculoskeletal symptoms are common. Arthralgias are usually polyarticular and symmetric, affecting small and large joints.
    Arthritis can also occur, and it typically affects large joints, but it is rarely deforming.

    Medscape: Medscape Access
    Living with WG/GPA since june 2010...

  3. #33
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    Quote Originally Posted by chrisTIn@ View Post
    I stumbled onto this article...
    Thought it would be nice to share, because it confirms what we were talking about (rarely deforming)


    Musculoskeletal symptoms

    Musculoskeletal symptoms are common. Arthralgias are usually polyarticular and symmetric, affecting small and large joints.
    Arthritis can also occur, and it typically affects large joints, but it is rarely deforming.

    Medscape: Medscape Access
    Thanks, Chris! I haven't heard the work "arthralgias" before.... sort of sounds like something between arthritis and neuralgia. Another one to look up.
    Anne, dx'ed April 2011

  4. #34
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    According to my brief search, arthralgia just means joint pain and can have many causes. I'm too tired to pursue it further right now! The "rarely deforming" part of what you posted is interesting, though.
    Anne, dx'ed April 2011

  5. #35
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    Quote Originally Posted by chrisTIn@ View Post

    Arthritis can also occur, and it typically affects large joints, but it is rarely deforming.
    at least WE have something not deforming...
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  6. #36
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    Quote Originally Posted by Alysia View Post
    at least WE have something not deforming...
    Yeah, nice to see Weggies catching a break somewhere!
    Anne, dx'ed April 2011

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