Hi Gwenn!
So glad to her that your in remission! We are working on mine...I have a very limited form of Wegener's with only my ears and trachea affected. I had severe ss in Feb. 09 and had to be trached as a result. Since then, I have been on 5 MTX weekly and Prednisone. This is our seconf time trying to taper the Pred. and seems as though 8mg is as low as I can get before my PR3(ANCA) becomes slightly positive again. I was just curious to know your story with RIT and if you could message me with more info, ie, how long you were on it, how often you took it, etc...I REALLY want this trach out, and seems like I need a new plan. I am willing to try anything, especially since you said it worked for you! Thanks, Nicole