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Thread: I'm new here...

  1. #1
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    Red face I'm new here...

    hello everyone-
    i recently joined the forum to meet people with similar circumstances as i have had...i found out in july of 2008 that i have wegeners...since then, my life has been a roller coaster...from prednisone to imuran, to a recent tracheotomy, this crazy disease is drivin me nuts...anyone feel the same way?

    ticklytoes

  2. #2
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    Dec 2008
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    welcome.you're right it is a crazy disease.there's nothing regular about it in any way.if you read the posts of other weggies you'll find everyone has different symptoms of varying severity.hopefully with the right treatment the roller coaster will level out a bit.keep in touch and let us know how you are doing.
    john

  3. #3
    Join Date
    Nov 2008
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    Nuts? Who, me?

    Why, it's easy to ignore the constant "I-can't-even-make-it-across-the-room" fatigue, the "I-can't-believe-something-can-hurt-this-much pain" and the nagging "Can-anyone-tell-me-when-the-ride-is-over" thoughts! HA!

  4. #4
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    welcome to the NUT HOUSE!!!!....must be all the meds.......

  5. #5
    Join Date
    May 2008
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    Yeah, nuts is right. I get regular occurrences of "it wasn't so long ago, that used to work properly" for some part of the ol' body. I hope you get off the roller coaster soon. Do you have family/firends that understand what you're going through?
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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