Hi Erika!! 15 years??!!! That's amazing. So am I rading this right when you say that your doc has diagnosed you with WG but doesn't want to treat it? I'd see another doc if I were you. The earl;ier you get treatment, the better the treatment will be.
Originally Posted by
Erika
And I have some questions I was wondering if any of you could answer for me.
Ask anything, any time and we'll do our best to answer them for you.
Originally Posted by
Erika
When and if I do have to start the medication, how much did it impact you?
HArd to answer as everyone is different. Depends what meds you are put on and what the doses are. Typical 'startup' meds are Cytoxan and Prednisone. These can have some effect but again, depends on the dosage.
Originally Posted by
Erika
Were you out of work?
Many were and still are. Others, like myself, were out of work for a few months while in hospital and recovering but after that, manage ok with a job.
Originally Posted by
Erika
Able to take care of your children?
I'll leave that to someone with kids
Originally Posted by
Erika
I'm petrified that I won't be able to do that when they have to start treatment, whenever that may be.
The key thing is to stay within your limits and not overdo it. You may be ok, you may have to pace yourself. I suggest erring on the side of caution and pacing yourself.
Originally Posted by
Erika
I'm just really happy I found you all, since I don't think my husband quite gets how scary it is to have this diagnosis looming over my head and not knowing when I will have to deal with it.
We're happy you're here too! Feel free to ask anything. Others will be able to igve a more detailed reply re: meds and kids. We're a family here and you're a part of it now
Forum Administrator
Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
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