User Tag List

Likes Likes:  0
Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 36

Thread: saddle nose

  1. #21
    Join Date
    Sep 2011
    Location
    Cornwall Bridge, CT
    Posts
    123
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks. I asked my rhuemy if I should see my ENT. I might just call him anyway. During my past 2 sinus surgeries I had asked him to a bit of a nose job as long as he was in there. Didnt want it to have to happen this way though.

    Heck I walk into thing reguardless. I could tell people my husband elbowed me during ther night!

  2. #22
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I agree that you should keep an eye on it.

    I don't have nasal or sinus involvement but my nose has gone through periods where it got very red, warm and the cartilage area became very tender. The cartilage has been softer ever since and if I hit the end it's extremely painful. My Wegs docs (including ENT) say it isn't Wegs but I know it is/was. It happened while the Wegs was "smoldering" and we didn't know it. It's not progressing and it doesn't cause any problems, so I just keep an eye on it.

  3. #23
    Join Date
    Sep 2008
    Posts
    303
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    Before diagnosis around the time of my first symptom of rhinitis, I also had a swollen nose which was very hot and painful to the touch. The doctor was sure this weird symptom was caused by sinusitis which was my diagnosis then. Of course, 6 months down the line I was diagnosed with WG. That was 3.5 years ago and the hot and swollen nose has never returned. I know now it was definitely WG but it never did develop into saddle nose.

  4. #24
    Join Date
    May 2011
    Location
    Lima, ohio
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    my nose started off a little swollen and very tender but I also have a hole in my septum which also helped with the collapsing of my nose because there wasn't enough support. I would definatly keep an eye on it and continue to talk to your doctors.

  5. #25
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Something that Jack and I used to discuss... With Wegs many symptoms seem to come and go on their own. Even when Wegs is in remission it can throw out some odd little symptoms at times. I've had a lot of things pop up and disappear on their own.

  6. #26
    Join Date
    Sep 2011
    Location
    Cornwall Bridge, CT
    Posts
    123
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I had sinus/head CT yesterday afternoon. The good thing about very small hospitals is that sometimes there are not many ppl there. The dr faxed in the orders at 1230 and I walked in at 230 to schedule my CT and the machine was free. Results should be in today. I will call my dr today to keep an eye out for results as I am sure he will not be expecting them. Nose hurts like toothache and it is not fun wearing glasses. So I guess I will really be walking into things. Thanks everyone.

  7. #27
    Join Date
    Oct 2011
    Location
    Livonia, MI
    Posts
    30
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    My saddlenose happened so gradually that I don't remember a specific incident. I just started noticing more and more that my nose looked different. I hadn't been diagnosed with WG but was constantly sick with sinusitis so I thought it was a side-effect of one too many infections. It wasn't until a doctor told me I had a saddlenose that I realized just how much differently my nose looked. I have gone back through pictures over the years and always look at my nose to see if I can determine when it started but all I can tell is that it was over a 1-2 year period. The ear cartiladge worked well for someone else but not for me so, for me, there must not have been much left to work with which is why they used rib/sternum cartiladge. I wonder how common it is because when I would go see my specialist he would ask permission to bring in some of their fellows that were still doing their residency to see what it looked like. I always said yes with a smile, but it was very embarrassing to have people looking my nose saying, 'oh wow!'.

    I still worry that one day I'll wake up and it will have fallen again and it's been over two years.

  8. #28
    Join Date
    Mar 2011
    Location
    canada
    Posts
    1,154
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Sangye View Post
    Something that Jack and I used to discuss... With Wegs many symptoms seem to come and go on their own. Even when Wegs is in remission it can throw out some odd little symptoms at times. I've had a lot of things pop up and disappear on their own.
    I am the poster child for this.
    lightning crashes
    leigh

  9. #29
    Join Date
    May 2011
    Location
    Lima, ohio
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    is the ear cartialdage surgery less painful and a quicker recovery then the rib/ sternum surgery?

  10. #30
    Join Date
    Dec 2009
    Posts
    752
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I think so mama

Page 3 of 4 FirstFirst 1234 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •