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Thread: saddle nose

  1. #11
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    Thats wonderful news Shannon. Glad you were finally able to get the correct surgery and the sternum cartiledge was used.

    I wont be allowed to even contemplate surgery til next August now (i already have the appointment booked) I have to be at least 6 months in remission before my Wegs docs will let me.
    "I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack

  2. #12
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    Shannon your nose looks great! Glad you can breath again!

  3. #13
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    thank you for your post shannon. I am scheduled for a consultaion in November for the reconstruction. I can't live like this I am only 25 and hate that my baby (shes 6 and my son s 3) is uncomfortable with me taking her to school because I look diffrent. I want to be my old self. How long were you hospitalized and not allowed to work?

  4. #14
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    And I must add Ms Shannon, you do look great. Having an intact nose is not as simple as vanity. It affects our mental well being.

    I am very happy you had a good result with your reconstructive surgery. I am the resident dental advisor on site, so I have an affinity for a conservative amount of esthetics. How we look does affect how we feel. We can marginalize that to a degree when our lives are on the line, but it should not put us in a prison of resignation to being less than what can be reasonably obtained. We certainly don't need to be guided by super models, but a small amount of vanity can encourage healthy choices, and ward off depression. Floss and brush well! Jane

  5. #15
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    Hi Shannon, welcome to the group. Like the others I'm glad your nose was repaired well and it's holding up. I hope you'll continue to post.

  6. #16
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    I'm so glad to hear that you are going for the consult. Coincidentally, my consult was also in November! For such a complicated surgery, I was home the same day. The most discomfort came from the sternum where they took the cartilage. I used a combo of Vicodin and Advil for a couple of days but surprisingly it was a pretty quick recovery, I was up and around in a few days (but sore) and then there is the white bandage on your nose for about a week. I think my favorite part was my kids reaction. They couldn't remember a time when I didn't have a divot in the center of my nose. Please feel free to ask any questions you think of! I'd love to hear about your progress!

  7. #17
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    Hi Shannon, welcome to the group! I also had a saddle nose deformity. My ENT also took cartiage from behind my ear.. so far it has done well. It has been about 2 years since that surgery.

  8. #18
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    Hi, Are there are telltale signs that a saddle nose deformity is occuring? On thursday the bridge of my nose felt just a tiny but bruised and mildly pink. Firday is was just a tiny bit puffy; just enough for my husband to notice and he never notices anything. I called my dr and he said that since it was only 24hrs that this nose thing started that I should keep an eye on it and to call him over the wk end if it becomes worse. Everyday it did become just a tiny bit more tender and pink. It is not all that painful. It feels like I was hit in the bridge of my nose. I am due to have my 4 wk repeat blood and urine today. Rhuemy said he'd order antibiotics if needed and perhaps a head sinus CT since it did not have one of those tests for this flare. My previous records have been sent to a Weggie spec and once it is all together my rhuemy will consult the the weggie doc. But for now????? Any ideas on what is wrong with the bridge of my nose?

    My wegs is in my sinuses, left ear opens and closed, mild nasal crusties but nose is always open and not drippy. Nasal discharge is clear and only occassionaly has a speck of blood. My clinical symtpoms have been resolving since I have been on Cellcept. I should start to go down on pred but will wait for answers to this nose thing.

  9. #19
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    Hi Kim, keep an eye in it and if ya become more concerned ask your Rheumy to be referred to a Ear nose and Throat specialist. My perforation and collapse took between 6 and 8 months so do keep an eye on your nose (just dont walk around like that or you will walk into things!)

    Let us know how you get on!
    "I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack

  10. #20
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    Quote Originally Posted by mama2005 View Post
    thank you for your post shannon. I am scheduled for a consultaion in November for the reconstruction. I can't live like this I am only 25 and hate that my baby (shes 6 and my son s 3) is uncomfortable with me taking her to school because I look diffrent. I want to be my old self. How long were you hospitalized and not allowed to work?
    My brother used to work for my favorite grocery store and I would purposely choose the line he was not working in so he would not have to say hi to me infront of co workers. This was while I was on 100mg of pred and ctoxan. Doctors could save me but they could not make me feel better.
    lightning crashes
    leigh

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