Just Diagnosed

[Rini]

Hi, I’m new! I am excited to find this sight, and people who have experience with this thing. I was diagnosed yesterday.
April 3th I almost, should have, passed out and was taken to the ER. They found a clump the size of my fist (seriously I measured it) in my lung. I was sent home on pneumonia drugs. About two weeks later my dr. could not find a drug to help and one night breathing got hard and I went back to the ER. I spent a little over 3 weeks in the hospital getting every test my continually growing team of Dr.s could think of. One of them decided to do a nose biop for wegeners granulomatosis. I was sent home on augmentin for my lung. No one would give me my biopsy results & I was getting concerned about what I found online, so I applied to this sight. I did not get better and with all the coughing, nose “bleeds” (the stuff looks like jerky), breathing trouble, and feeling like I was going to blackout I tried to contact my doctors.
In the end my mom took me back to the ER where one of my doctors found my test results and put me on 40 of prednisone. Also while in the ER I had them do a urine tests. I had “very low” levels of micro blood. That’s new. The nurse assured me it was nothing but I can’t help but feel uneasy. I know very little about WG drugs but it seems like there is another drug I should also be on. Should I be concerned?