Just Diagnosed

[renidrag]

I'll say you should be proud. You have gotten this far in education, I am sure you can handle the finals. Just remember, you already know the answers. And always remember, we will be here for you.
Dale

[Dirty Don]

Feel better now Rini? You should, that's a load you just let off...you've done so much so far, you have so much left to do...the only thing in your way right now is you. You've dealt with the WG, the parents, the school, and now the grandparents...what's slowing you down? Accumulation? Hmmm, wait till you get older...oh, you ARE getting older...that's a good thing Martha! None of this goes away, and if some do, they are replaced by other hurdles in life. From what I gather, you got spunk...keep it up...so you're a bit tired, well, OK, a lot tired; you've won so far, keep winning...so saith Dirty for today's pep talk...you'll get it done, I have that feeling about you!

[Alysia]

Hi Rini
I dont think WG or the drugs are infecting our cognitive ability. the only obstacle is thinking that you cant. I think that you can do it. you are strong and facing bravely a lot of things. finals are not as dificult as having WG.
try to get enough sleep, even take something if needed.
good luck with your finals !

[Rini]

Feel better now Rini? You should, that's a load you just let off...you've done so much so far, you have so much left to do...the only thing in your way right now is you. You've dealt with the WG, the parents, the school, and now the grandparents...what's slowing you down? Accumulation? Hmmm, wait till you get older...oh, you ARE getting older...that's a good thing Martha! None of this goes away, and if some do, they are replaced by other hurdles in life. From what I gather, you got spunk...keep it up...so you're a bit tired, well, OK, a lot tired; you've won so far, keep winning...so saith Dirty for today's pep talk...you'll get it done, I have that feeling about you!

thaks i think i the end i was just frustrated from being on my on for too long, good to be back

[Roger]

I got very sick last Sept. with pain in my shoulders, arms and legs. I could barely get out of a chair and had trouble walking. I went to the ER at St. Joseph Hospital here in Tampa. They found nothing after two days and sent me home with instructions to see an internist. I went to see an internist the following Thursday and after a couple hours in his office being checked and blood tests, I was admitted to Florida Hospital. My internist called in kidney specialist who suspected immediately I had Wegener's. He ordered a kidney biopsy that Thursday night/ Friday AM. He also put me on kidney dialysis immediately as my kidneys were failing. Test results Monday showed I had Wegener's. After 28 kidney dialysis treatments and 7 plasma Pheresis treatments, I was taken off dialysis treatments shortly before Christmas. I am now off Prednisone and on Azathioprine 2.5 tabs per day. I still have not recovered my strength and stamina is slow too return. I'm eating better but have not gained back any of the 25+ lbs I lost. I'm 70 yrs old and have always been active riding Arabian horses and playing basketball until about a year ago.
I tell you my story hoping you will seek out a kidney specialist with Wegener's experience. The ONLY symptom I had was a sinus infection which is one of five symptoms per my renal specialist. My kidney function was down to only 5% and now I am at 35% and doing well.
Best wishes to you as you seek medical help.

[mishb]

Hi Roger and welcome to the forum.

Thankyou for sharing your story. I hope it helps others to realize that, it will take time, but things can start getting better.
It also shows that you need to be vigilant with your care.

[drz]

I got very sick last Sept. with pain in my shoulders, arms and legs. I could barely get out of a chair and had trouble walking. I went to the ER at St. Joseph Hospital here in Tampa. They found nothing after two days and sent me home with instructions to see an internist. I went to see an internist the following Thursday and after a couple hours in his office being checked and blood tests, I was admitted to Florida Hospital. My internist called in kidney specialist who suspected immediately I had Wegener's. He ordered a kidney biopsy that Thursday night/ Friday AM. He also put me on kidney dialysis immediately as my kidneys were failing. Test results Monday showed I had Wegener's. After 28 kidney dialysis treatments and 7 plasma Pheresis treatments, I was taken off dialysis treatments shortly before Christmas. I am now off Prednisone and on Azathioprine 2.5 tabs per day. I still have not recovered my strength and stamina is slow too return. I'm eating better but have not gained back any of the 25+ lbs I lost. I'm 70 yrs old and have always been active riding Arabian horses and playing basketball until about a year ago.
I tell you my story hoping you will seek out a kidney specialist with Wegener's experience. The ONLY symptom I had was a sinus infection which is one of five symptoms per my renal specialist. My kidney function was down to only 5% and now I am at 35% and doing well.
Best wishes to you as you seek medical help.

Be careful Roger. I found it only took a few weeks to regain my lost weight but then I added another 25 with the help of the prednisone (pregnantzone) that i can't unload even though it has been over three years since my diagnosis. Now it seems my belly bumper and i have become such good friends it doesn't want to ever leave me. I still take the pred (5 mg) and azathioprine though and insulin which makes any weight loss tough.

[Dirty Don]

(pregnantzone)

Is this drz humor?????!!!!! LOL! Good one!

[drz]

Is this drz humor?????!!!!! LOL! Good one!

It sure makes me look pregnant and that wasn't even listed as one of the common side effects.

[Rini]

you guys are such good support! Is there a way for me to get updates on the threads I am following? I keep getting caught up in life and losing the conversations. Ok i did fail that math, I did try to retake it this summer and I was kicked out for paperwork enrollment problems. My current plan is to take a semester to focus on it and get the credits for my minor degree. I cant get this validated for a really long time but it would still be chipping at my to do list while falling behind in my program. I finnally got more chemical balencing drugs so I have less breakdowns and a supportive boyfriend who really understands how stupid I am at taking on more than I can handle. I think I have this stupid idea that I want to prove to myself the diagnosis dose not change me or hold me back? so I try to compeat with my valedictorian, over achieving, healthy friends? I am finding it is truly as stupid as it sounds. For the summer I have cut back to a few online classes and chiling by the pool with so much sun screen I look like I was dipped in glue.....(my boyfriends new policy after I came home looking like elmo last year.) I learned tattoos really do take 3 times as long to heal on drugs and that not all vegetarians are unhealthy. I have not learned how to sleep like a normal person yet but I have fewer nights up and working myself into a panic tizzy about everything under the sun. you guys are really supportive and truly the most calming thing I could ever find. Experience is the only way to survive.