Originally Posted by
WeggieParent
Rini - my daughter also had a hole in her lung and a chest tube from complications with WG. (She was 14yrs old when diagnosed over a year ago.) Reading your post about clamping the chest tube sure brought back memories! We went through that several times. If they aren't able to remove your chest tube soon, I hope it encourages you to know that she was able to go home from the hospital with a portable chest tube (we named it Fred) that she tucked into her jeans pocket and noone knew she had it. It took awhile but her lung fully inflated, they removed the chest tube and her lungs are good today! She even played softball this year at school. Prednisone will make the healing process take longer than normal but you will heal!! Hang in there! I sure understand your pain and frustration.
We also travelled to the Cleveland Clinic to see a WG specialist and I agree with everyone else - best money we ever spent!
Best wishes to you!
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