User Tag List

Likes Likes:  0
Page 2 of 20 FirstFirst 123412 ... LastLast
Results 11 to 20 of 193

Thread: Just Diagnosed

  1. #11
    Join Date
    May 2011
    Posts
    266
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Sangye View Post
    Rini, you're so young-- are your parents helping?
    O yes, my fam is pro @ this. I was the freak of the family for not having a autoimmune system disease. My grandmother has lupus and my mom and recently diagnosed sister have crohns. She is younger, but had way less drama as everyone knew what she had. they tell me this is not genetic, I don't think I can believe that. My dad did research as soon as any of the doctors mentioned it as a posibility and would not let me come home from the hospital until they tested me. My mom staid with me a lot and many of my friends and family came buy for support. @ the hospital it was not unusual for someone to exclaim "you are a teenager!" walking in the door. I still am very happy 2 have found this sight and get to read about what this thing is. I don't know what age is common for this but my doctors keep saying this is early.
    Experience is the only way to survive. <3 Rini Orange

  2. #12
    Join Date
    Feb 2011
    Posts
    328
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hello Rini,

    Sorry to hear about your illness. According to our daughter Holly's specialists WG in youth is rising slowly but surely. They get a few more kids every year.

    Good to hear you have family support and their history with autoimmune disorders will go a long way in helping you through.

    That "genetic" connection is a tough one to understand -- I've tried my best to read everything pertaining to it yet the best I can discover is that research in that area is our best hope for finding a cure or better treatments. As far as genetic predisposition for the actual disease - it is much harder to make that link at this point... but then again... it is hard to make any "consistent" links with this disease. Many factors (environmental, infections, vaccination/drug reactions, etc.) have a role to play but in what order, time frame and what percentage is a real mystery.

    Getting the right medical experts on your team is key now .....

  3. #13
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Wegs typically affects older people than you (age 40 and up). But we have many members on here who are in their twenties, and many who were diagnosed as teenagers.

    Wegs is not genetic, though I understand how it might look that way to you! Glad to hear you have family advocating for you.

  4. #14
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Go to Cleveland Clinic, I go there and see Dr Langford. You need to get proper treatment, you are very young. Wishing you the best!

  5. #15
    Join Date
    May 2011
    Posts
    266
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Dr. Langford? ok, that is slightly far away but I hope to try and go this week end. I am surprised to find you live so close!
    Experience is the only way to survive. <3 Rini Orange

  6. #16
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I live in Greenville.sc, i usually drive 10 hours there to see her. But this time I am flying. Need to call the Cleveland Clinic and make an appointment. Have you been to the Vasculits Foundation web site yet? Good information there along with Weg specialist.

  7. #17
    Join Date
    May 2011
    Posts
    266
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    gass is so expensive! I will go to that sight now
    Experience is the only way to survive. <3 Rini Orange

  8. #18
    Join Date
    May 2011
    Location
    Lima, ohio
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi, I am twenty four years old and was just diagnosed earlier this year. The staff at Cleveland Clinic is great. I see Dr. Hoffman. It is worth your gas money I have to drive three hours to get there and I am going there every month. No one in my town has ever treated anyone with Wg so I am making the drive. In my experience get an early appoinment because they will send you around to several docs and will have most test results the same day. Its truly a great place and you will be in great care.

  9. #19
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    21 Post(s)
    Tagged
    0 Thread(s)

    Default

    Speaking of the price of gas we are paying 4.12 a gallon here right now. That is 4.12 Canadian dollars per 3.78 litres of gas.
    Phil Berggren, dx 2003

  10. #20
    Join Date
    May 2011
    Location
    Lima, ohio
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Here we are paying 4.15 to 4.25 for a gallon. It sucks but I can't walk so I keep using the good old car and paying the crazy prices.

Page 2 of 20 FirstFirst 123412 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •