Haven't posted in a while, as I returned to school/clinical and have been doing well. I was on cytoxan for three months, and I just made the switch to Azathioprine. I have started at 100 mg per day, and am weaning down on the prednisone by 5 mg per 7-10 days. Now at 35 mg per day. Other than some tingling to hands and feet, and have noticed that my jaw kind of aches, I am feeling pretty well. Sinuses are pretty much clear, and lung CT came back with only one small 3mm nodule in LLL. (Improved from CT done 3 1/2 months ago prior to cytoxan) I am hoping that I stay in this state with the Imuran. Has anyone else had the weird tingling/numbness, and strange jaw symptoms- especially when chewing, etc.? I am guessing it's due to coming down on the prednisone. Also, wondering what the right dose of Imuran should be? Forgot to ask Dr. Langford at CC, and my rheumy here just started me on 100 mg/day to see how I would tolerate it initially. (rule out allergic reactions) Not sure what she will increase the dose to? Hope everyone doing well!
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