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Thread: found a semi famous wegners patient...

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    Default found a semi famous wegners patient...

    Her name is Wendy shanker. Google it. she has been in tv shows, she is a comedian and she is a published author. whe was On talk shows etc.
    lightning crashes
    leigh

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    I read her book recently "Are You My Guru?" Very interesting.

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    That's awesome! Was her book good? It sounds interesting.
    Nicole

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    I am going to order the first two from the library. should be interesting to read about dealing with wg in a humorous point
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    leigh

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    Uh oh, I was scared for a second. I read a Q & A she did, and when asked how she's gotten healthy, she said she stopped taking all her Wegs meds, and suddenly was healthier. But then in the next sentence, she says it was Rituxan that has made all the difference for her. She said: "I started taking this new drug, Rituxan, that was a lot gentler, a lot more targeted and that has been a real success story."

    Well done, Leigh! Now we have a famous face for our little group of weggies (lol - I know how you love that word!!)

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    Quote Originally Posted by Chris G View Post
    Uh oh, I was scared for a second. I read a Q & A she did, and when asked how she's gotten healthy, she said she stopped taking all her Wegs meds, and suddenly was healthier. But then in the next sentence, she says it was Rituxan that has made all the difference for her. She said: "I started taking this new drug, Rituxan, that was a lot gentler, a lot more targeted and that has been a real success story."

    Well done, Leigh! Now we have a famous face for our little group of weggies (lol - I know how you love that word!!)
    I was going to make that the title..."a famous weggie" but i did not want to contradict myself.

    I did ponder not mentioning her as I also read she about her beliefs on natural drugs but i felt okay when she mention rtx
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    leigh

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    I have emailed back and forth with her extensively (she and I share a ENT, and a neighbor's sister is a good friend), and she wrote an article for Self or Shape or one of those magazines about how after the first time she went into remission she went into deep denial when she started becoming symptomatic again and wound up in absolutely horrible condition. I have no idea of where her head is at now, but it is definitely a cautionary tale (I read it shortly after diagnosis and was horrified).

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    It sounds like she thoroughly convinced herself that treating Wegs with natural treatments is a very bad idea. That makes two of us!

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    Her books sound interesting. I may have to check them out further.
    Phil Berggren, dx 2003

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    Quote Originally Posted by pberggren1 View Post
    Her books sound interesting. I may have to check them out further.
    BOTH BOOKS ARE YOU MY GURU AND FAT GIRLS GUIDE TO LIFE ARE 20 dollars on Amazon books I ordered them today

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