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Thread: Glad to be diagnosed

  1. #81
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    Hi Geoff,
    Reading your post, I'd like to think that you have succeeded in unlocking the grip itself over you. Your attitude is shining thru'. Best wishes.
    Ravindran

  2. #82
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    @Geoff, just read your story . Wondering what became of the DNA studies?
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  3. #83
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    ongoing Gab, in fact during my latest Clinic visit I was asked to take part in another trial, this time about the long term effect of Retuximub.

    Its always very exciting to hear about ongoing research into our illness and to hold out hope for a breakthrough in its treatment.

  4. #84
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    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  5. #85
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    LOL - love it Mikeg-2012! Where did you get that?
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  6. #86
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    Cool

    Quote Originally Posted by Gab122 View Post
    LOL - love it Mikeg-2012! Where did you get that?
    I did a simple google search for dancing animated emoji and saw this one instead! I was looking for a smiley face dancing and this one was MUCH better! ROFL!!
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  7. #87
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    Quote Originally Posted by Geoff View Post
    ongoing Gab, in fact during my latest Clinic visit I was asked to take part in another trial, this time about the long term effect of Retuximub.

    Its always very exciting to hear about ongoing research into our illness and to hold out hope for a breakthrough in its treatment.
    @Geoff can you please vote on the Poll of rtx efficiency (if you didnt vote yet) ?
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  8. #88
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    Quote Originally Posted by Alysia View Post
    @Geoff can you please vote on the Poll of rtx efficiency (if you didnt vote yet) ?
    Speaking of voting.... @Geoff Could you also come over and run for president. We need someone else to vote for on Tues.
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  9. Likes annekat liked this post
  10. #89
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    Default Re: Glad to be diagnosed

    3 years on and what can I say??.. RTX is doing its stuff for me, yes I have some bad times but seriously no complaints...for the life of me I cannot get Pred free after 11 years but it doesn't bother me anymore... its just a number.. Just returned home from a visit to the Endocrine Unit at Addenbrookes, Cambridge, UK where they have been monitoring my adrenal glands. I'm delighted to say that 11 years of continuous pred haven't sent them to sleep!!.. the glands that is and not the staff!!...I live a full life now that I am retired at 68 years of age, I get a full work out looking after my 3 granddaughters aged 4 to 7 years.. phew! I know I am lucky but have always adopted a full on positive attitude as long standing members of this amazing Forum know only too well..
    I spent so much time in the early days on this excellent Forum chatting to fellow Weggies and fact finding, there is no equal..I wish you all the very best of health and love..xx

  11. Likes Masha, annekat, Dirty Don, Alysia, mishb, Aneinu, gilders liked this post
  12. #90
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    Default Re: Glad to be diagnosed

    Geoff, I was at Adds today! Clinic 12 for me. Good to hear how you're doing.

  13. Likes annekat, Pete, Alysia, Geoff, Aneinu liked this post
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