Originally Posted by
Geoff
The thought that has occupied my mind is that we present ourselves to the Doc with almost a conditioned response to 'How do you Feel'. We struggle to come to terms with the wierd aches and pains and rationlise the whole or Big Picture. We are conditioned from our mothers knee not to moan about 'little aches and pains' and to 'put on a brave face'. Over 2 years since DX, and I have had a very good remission apart from one heavy flare exactly a year ago which needed Cyclosulphamide infusions over 3 months to quiten down. Plain sailing from then to now as I managed to get my pred down to 5mg and hospital visits to almost 3 month intervals. The 'Holy Grail' was in sight!!.... and then MBF crept up on me unnoticed. I am fortunate to still be able to go to work and to all outward appearances enjoy a 'normal' life, so I put my general health issues down to me trying to live to previous expectations. The joint pain was a very unwelcome vistitor the other weekend and I suddenly felt very vulnerable. Its true to say that I have turned a blind eye to the inevitable hold this illness has over us. Fortuantely I was tended to very quickly by Addenbrookes and for the moment an increase in pred seems to be doing the business. Had a letter this week to invite me in on Monday for a CT scan and starting to feel upbeat again. Its nice to be wanted!! Sorry to blag on, I know that so many of you are far worse off than me and wonder why I am simpering on. I am with you all the way and pray for our 'Big extended Family'
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